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04-12-2007, 12:51 AM
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#1
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Sure seems like my drain should be...
out by now? I had a MRM last yr, with a SNB which involved removing 5 of 16 lymph nodes. But this yr I just had a prophylactic *simple* mastectomy. (Nodes were not touched.) My drain was in 30 days last year and I am going on 30 days this time too for a much *lesser* surgery. From what I've read about a simple mastectomy verses the MRM along with SNB....I should of had drain out long before now? I read on several pages that usually after a simple mastectomy that doesn't involve the nodes...the drain is removed a few *days* later. (Keyword being *days*.)
Did any of you that had a prophylactic mastectomy have their JP drain in this long? It looks like I am going to go pass the 30 day mark at the rate I am going. (I am dying to get all the tape & dressing off my body...I want a FULL, & complete shower.) 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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04-12-2007, 04:37 AM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Chelee
I don't know if this helps or not,but after my reconstruction, I developed a hematoma, not visable on the outside, but I had so much drainage, I was forced to leave the drain in for almost a month...with my mastectomy, the drains were in about 8-10 days.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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04-12-2007, 08:32 AM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 144
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I had a MRM with 8 nodes removed two weeks ago today and got the drains out 8 days after surgery. I had to wait until the combined output from both drains was 35 cc's or less. I was also able to shower the day after surgery. I took an old shoe lace, tied it around my neck, and used a safety pin to secure the drains around my neck while I showered.
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04-12-2007, 10:32 AM
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#4
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Senior Member
Join Date: Mar 2007
Location: Greendale, WI
just outside Milwaukee
Posts: 211
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drains
Emelie
I had a bi-lat mastectomy 10/05. The right side for tumor, the left side prophylactic. Had 4 drains. First was out in hospital, 2nd the first week, but the last two I could not get the drainage to be less than 30cc/day. By the end of the 2nd week, I cheated and told my surgeon the drainage was less than 30cc/day. He removed them. I went back to work the next week. The hospital I work at happens to be connected to my surgeons office building. I had to go back into his office every 2 to 4 days to have both sides drained by needle aspiration. Since I had no feeling in the area they aspirated, it was not painful, just time consuming. I did feel much better w/ the drains removed and I was lucky I could just hop over to his office whenever the swelling became too uncomfortable. This went on for about 2 months. I guess some of us are just juicier than others.
I also had a freeflap reconstruction in 6/06. I had 6 drains (2 on each breast and 1 each on right and left abdomen). These were removed on my first post op visit with no problems after. Side note: I did mortify my daughter taking a sponge bath outside on a lawn chair. We have a privacy fence, so I got naked (except for my 6 drains of course) and poured pictures of soapy water over my bottom half while sitting on on the lawn chair. It was a little ironic that birds were chirping at the birdbath a few feet from where I was taking a birdbath. My daughter Nicki, (Age 25 who took unpaid family leave to help me out - bless her sweet giving heart) washed my hair while laughing hysterically over my lack of modesty.
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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04-12-2007, 12:22 PM
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#5
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Like Emelie I had my drain removed after about 8 - 10 days. The first mastectomy was 8 days. Second, prophylactic, was around that time frame as well. I, too, was told when drainage is 35cc or less for 24 hours it could come out.
Hope you get it out soon.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-13-2007, 12:20 AM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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A few of you said 8 to 10 days...that seems to be the norm. I heard the same thing from a couple women down at my cancer center. I wonder why mine is taking so darned long? So much for a *simple* mastectomy...obviously nothing about it was simple since I am still draining 29 days later. I am suppose to get to 30cc's or below. I've already gotten 94 cc's just today alone. The fluid is just now gettting clearer verses that blood red color. This doesn't seem right to me. I understood this after my MRM and SNB last year...but I shouldn't still be draining over 90cc's per day after a month.
As you can imagine I am so tired of all the gauze & tape on my stomach & that tube hanging out. Its sore and un-comfortable. Plus I want a full and complete shower. My surgeon is adamant about staying OUT of the shower. He does not want it wet. I am tired of just washing *parts* of myself. Gee...I've had my mastectomy on 3-15-07, and my ooph on 4-5-07...and in all that time NO shower. Hands up...how many can SMELL me from where your sitting? LOL (Don't answer that!) hahaha
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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