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Old 09-24-2007, 06:38 PM   #1
Faith in Him
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Unhappy I was told this would happen...

so, today I had to pick up my mother from the same surgery room where I had my breast cancer surgery eight months ago. I wasn't really thinking about it until I walked into the recovery room and saw the same recliner chair where I was prior to surgery.

Then it happened. Tears flowing all down my face, fear rising up in me just like the day of surgery, lack of focus, you know, all those emotions. I had the meltdown right there in the middle of the room. Not fun and embarrassing to say the least. But, it happened and I knew it would, just didn't know were or when. Maybe now that it is over, I won't have another one.

Thought I would share with those who truly know how I feel.

Blessings,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 09-24-2007, 07:04 PM   #2
Liz J.
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I understand

Dear Tonya,

I am sorry you had this experience. I can relate, but on a different note. I had my mast in April 2005 in the same hospital where my dear Mom passed away less than 2 years before. I can't even get into details, but when they finally found a room for me around eleven at night I broke into tears thinking about all the time she spent in and out of there and those last days. Mom did not have bc. She was 88 yrs. old and had suffered from Alzheimers, etc. for about 6 years. She was my special angel and, well, I just can't say any more as I am crying for you and myself. Please know that I know and you are both in my prayers.

Sincerely,

Liz J.
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Old 09-24-2007, 07:39 PM   #3
Chelee
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Tonya, I'm so sorry that this happened to you and I know how embarrassing it can be. I've been there and done that...its just that it was different circumstances for me. I had people tell me not to let it bother me but that's easier said then done as I am sure you know all to well. This is a very emotional roller coaster your on once DX so you can't be too hard on yourself. I've had several meltdowns when I least expected it. They come out of know where!

So you hang in there...this is not an easy road to be on. These things happen. We all have our good days and bad. Its all very normal and believe me...I don't want to speak for the others...but I am pretty sure everyone here has felt like that and had that happen when they didn't expect it. I'll be keeping you & your Mother in my thoughts and prayers.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 09-24-2007, 08:30 PM   #4
chrisy
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I had a similar experience. Almost a year after my surgery, I was taking the "mindfulness based meditation/stress reduction class". There was an all day meditation session in a conference room in the basement of the hospital, right down the hall from where I had the sentinal node dye injection. I didn't even have the surgery at that hospital, but it didn't keep me from having a complete meltdown! I was completely taken by surprise, especially since the rest of the classes had been held at the hospital where I DID have my surgery and I had had no such reaction! Ya just never know where those crazy emotional triggers will get ya.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 09-25-2007, 03:55 AM   #5
Sheila
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Yonya
you are not alone in what you are feeling...you are reliving a day that changed your life forever....like Chrisy said, none of us know when the trigger will hit.....but tears are good, they cleanse you in a way, and allow you to pick up yourself and begin the fight full of strength.
You and your Mom are in my prayers.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 09-25-2007, 06:05 AM   #6
mts
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Tonya,

YOU ARE NOT ALONE !!!

I bawled my way out a 3rd opinion appt ... in the elevator, through the parking lot and all the way home. There are times I feel a melancholy rage, and I know its normal. This horrid disease plays its sour chords on us every now and then.

Like Sheila said - tears cleanse you in a way...

Hang in there-
Maria
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Old 09-25-2007, 07:23 AM   #7
Margerie
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You just know you are going to get caught with your guard down at some point! I was tough as nails and was almost a year from diagnosis when my meltdown occured. Get this, at the spa! I was getting my first wax just before my big reconstrucive surgery because I didn't want to be shaving anytime soon. The gal asked me if this was the first time for a wax. I couldn't get past anything but "Cancer" before I started cryng. She was so nice, although I am sure scared out of her mind to wax the legs of a madwoman. I was so worried about what she thought- but hey this is our own personal truth and nothing to be ashamed of!

Another year has past, and I think that was my only meltdown. Hey, chemo brain comes in handy sometimes. I just saw the same gal for a facial. She remembered me, of course, and was nothing but gracious!!

Anyway, enough about me- I am thinking of you and your mom. May you continue to heal together.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 09-25-2007, 08:26 AM   #8
Mary Anne in TX
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But isn't it so sad that it is embarrassing to have a "come apart"! Seems like it would help get through the first few months and then again when more reality of "life is new and different" sets in!
I found myself just watching old (I mean really old) movies late at night or when I'm alone and just letting myself have all the feelings I need to. It's really helped me to just keep letting it go over and over. I find it very hard to share my feelings with others or to ask for help; but knowing how important it is not to "carry the feeling", I find a way! I am getting better though.
Tonya, good for you for letting go and being in your feelings and doing what you needed to do! Best wishes for many happy days to come! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 09-25-2007, 11:03 AM   #9
Kimberly Lewis
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Red face mini meltdown

I was laying in bed the other night and absentmindedly running my hand over the lymph node area's and came across this big lump. I totally panicked! I jumped up and looked in the mirror only to see a MOSQUITO bite! It was in a numb area so.... Can't believe I am still so freaked out. deep breathing helps sometimes!
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Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes

BRCA 2
positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara


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Old 09-25-2007, 12:33 PM   #10
Andrea Barnett Budin
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Thumbs up Evidence That You Are Healing!

Tonya, We all relate to your not so private meltdown. Do not be embarrassed. Any one who has been down this road totally empathizes with such a moment. And, Tonya it is true that is a part of the process, the grieving for what has been lost and what must be endured. Crying is HEALING. It is a good thing that this happened, believe it or not. It means you are in touch with your emotions and deepest thoughts and have not only connected with them, but purged yourself of them. This is how we experience our feelings and then move on. You knew it would happen and so it did. MAY YOU *KNOW* THAT YOU WILL BE HERE ON THIS EARTH LONG INTO THE FUTURE. WHAT WE *KNOW* COMES TO PASS! That is a Knowing I cherish, and work with all day, every day. Have FAITH in that, Tonya.

Typically, I had mine privately, behind a closed bathroom door. I melted right down to the floor. I couldn't speak. My daughter was on the phone, my husband gently knocking, but I could not yet respond. I had to have a moment. Then, I became revived and took a shaky step back into Life. May you be stronger for dealing with what must be dealt with so that you can get on with Life and dance with NED...

Prayers and love to you and Mom...
Andi

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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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