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12-08-2006, 09:15 AM
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#1
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Found a new lump
No, no, no, say it can't be true. I found a lump in my OTHER breast yesterday. It is very painful to touch, just under the areaola. I have a mamogram scheduled for Tuesday. Jeez, I just got done with chemo, had my first herceptin and haven't even gone to radiation yet.
I am scared, and I am unhappy
Love to All
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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12-08-2006, 09:18 AM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Hang on there, perhaps it is just a cyst or fibrocystic tissue...I am hoping and praying for you that is what it is. Geezzz is right, this disease is scary and frightening and I don't know if that ever completely goes away. Good luck, will be praying for you. Please let it be good news and not bad. Let us know.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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12-08-2006, 09:31 AM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Susan,
I can sooooooooooooooo relate to your fears. The day before my radiation was to be finished I got a call from my surgeon saying that there was a questionable area of calcification in my other breast (found through a mamoo) and they wanted to do a stereotactic biopsy of it. Oh geez! I just cried and cried and couldn't believe it. I thought HOW COULD I HAVE CANCER AFTER JUST COMPLETING 8 CYCLES OF CHEMO. Well, thankfully, ALL CAME BACK BENIGN and I was the happiest girl in the world. HOWEVER, at that point I made the decision to have my other breast removed and my insurance approved it. My surgeon didn't fight me on it at all as she knew from the get go that having both breasts removed is really what I wanted. After this scare I think she really agreed with me.
So, I am now breastless and happy as can be.
God be with you and I'm sure it is nothing.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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12-08-2006, 11:21 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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I hope this turns out to be nothing. Try not to worry (ha ha I know that's easier said than done!) But you've been through plenty already and are due for a break and good news. Hoping it will be just that - good news.
Hang in there
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-08-2006, 12:24 PM
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#5
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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SusanV,
I have followed the story of your courageous fight since you started posting. For you to have to deal with this new scare is so unfair. I admire the way you have dealt with your illness and your spirit. You will be in my thoughts. Here's to good news come Wednesday!
Hopeful
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12-08-2006, 12:27 PM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 823
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I so know what your going thru. 10 months after my DX, the other breast showed a questionable area. Not only no, but hell no I wasn't going thru this again. SO, I had a Simple Mastectony done on that side. I was already thru Chemo and Rad's and was into Herceptin when this happened.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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12-08-2006, 12:31 PM
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#7
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Susan V,
Sorry to hear that you have a lump in your other breast. As hard as it is please try and remain positive. Most breast cancers are not painful. It could any number of things. I'll keep you in my prayers. Please keep us posted.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-08-2006, 04:32 PM
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#8
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Susan,
I surely hope that the lump isn't cancerous. Hopefully because you have been having chemo it is something else.
Hugs and Prayers,
Lexi
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12-08-2006, 07:52 PM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Susan
I hope it is just a cyst...the pain makes it sound like one. I will be sending good thoughts and prayers for good results...you have been there and done that and once is enough for any of us.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-08-2006, 08:13 PM
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#10
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Senior Member
Join Date: Oct 2005
Posts: 476
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with active chemo and Herceptin you are doing, the chance of having another cancer is not likely. Hope the best and keep your chin up. I am praying for you.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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12-08-2006, 09:45 PM
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#11
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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More thoughts and prayers. Let us know how it goes. BB
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12-09-2006, 08:53 AM
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#12
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Nothing!
Dear Susan,
hopefully it will prove to be nothing! This happened to me also in my other breast after my lumpectomy, had to have a needle biopsey...it was extemely
stressful to say the least....You are in my prayers and lets think positive that
all will be well.....PLEASE let us know how you are!
Sending you strength and hugs,
Jean
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12-09-2006, 03:29 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Dear Susan
i am praying it is a benign lump.I know the waiting is so hard - one of the cruelest parts of this disease. Know that we are all here with you.
love
lindaw
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12-13-2006, 10:54 AM
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#14
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Thank you all for posting such wonderful words of encouragement. I have great news to report. I had a mamo & ultrasound done yesterday, and everything is just fine. Most likley a syst. It had gotten much smaller, and was no longer painful by the time I arrived at my appointment yesterday.
I was sooo happy when the doctor gave me the good news. I was really freaking out prior to that. Thanks again for posting. I really appreciate it !
Love to All
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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12-13-2006, 12:36 PM
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#15
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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RE: Your benign cyst.
Wonderful news!! That happened to a woman in my Wellness Community support group. She was stage 3, had a mast and reconstruction, was getting her chemo and herceptin and found a lump in her remaining breast. Nobody needs that terror. It was a fluid filled cyst. I remember the group facilitator telling her that with all the herceptin and chemo she'd been taking, it would be unlikely that tumor would grow in her other breast. The facilitator was right I'm happy to say. Happy Holidays. Merry Christmas. A Happy and Prosperous New Year to you. MJO
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-14-2006, 08:04 AM
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#16
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Member
Join Date: Mar 2006
Posts: 23
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Wonderful news
Every time one of us goes through the misery and terror of a feared recurrence, and it turns out to be a false alarm, I think it helps us all remember that often things turn out happily.
Enjoy the return to a holiday state of mind!
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12-14-2006, 03:13 PM
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#17
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Susan, I am so happy you got good news. Its just terrible having the worse run through your mind and having to wait for the scans and results of it. I feel like you did. I have my FIRST mammo since my DX last yr this coming Monday on my remaining breast that I WANTED removed but surgeon talked me out of it. This stress is killing me. I have had these little pains that come and go in my remaining breast and I feel a little lump. Doesn't feel right. Plus I had been noticing this pain that comes and goes in the axilla area of that same side.
Now I have to wait to have mammo this coming Monday (18th) and wait for results. Although after last years mammo I now know if they come back in asking for MORE views...I will REALLY panic! I am so nervous about this...its the same time of year this whole nightmare started last year. I hope and pray I get good news like you did.
Anyway, now that you got this behind you...GO enjoy your holidays.  I am thrilled everything turned out ok. Wishing you all the best now and for the coming new year.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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12-14-2006, 08:25 PM
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#18
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Susan,
So happy to read your wonderful news! Now have two glasses of eggnog!
Jean
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12-15-2006, 11:01 PM
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#19
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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That's great news! You must be so relieved. Now go an enjoy your holidays filled with joy and free from worry!
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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