Hi StephN,
It does help to come to this site, I've learned so much! And even though we live in a small town-we're only 20 min. from Geisinger Medical Center in PA. In 1981 my mom was in a clincal trial. I'm not sure what drug they gave her (she can't remember either) but it was the milder one of the two. She often wonders if the other group with the stronger drug did any better. Back then it wasn't as easy to obtain information and I was only 11. I'm not sure if they are still doing clinical trials at Geisinger or not.
She's already had the drugs you've mentioned. Her onc. says she has done wonderful. But now it's getting tough again. I'm still holding on to some hope. I'm glad I have people like you to ask these questions. It helps to ask someone who's been there. I don't know how she's feeling, I'm not the one with the disease. I just have to stand by and watch. You really feel helpless. But, reading other peoples stories on this site really boosts your spirit. I'm glad it's here. I'm sure it helps alot of people get through this.
Thanks again, Steph, for the advice!
Take Care,
Penny
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