I was originally diagnosed with Stage IV Inflammatory BC in January of 2000. I had a Modified Radical Mastectomy with 24 lymph nodes removed and 5 were positve. I am Her2+. I had four treatments with Adriomycin & Cytoxin, then four treatments of Taxol. Then came 32 Radiation treatments, and then I had Tamoxifen until I was diagnosed with Stage IV Mets to lung/liver/nodes this past October. I had a pleural effusion (fluid build up in the lungs) and had to be drained. The fluid came back so I had
video-assisted thoracoscopy (VATS) surgery w/pleurodesis (drained, biopsied, photographed and sealed with talc like your friend). I now get
Herceptin weekly. I also get Taxatiere and Carboplaten three weeks out of the month, Femera daily and Lupron (shuts the ovaries down) once every three months. Now, I get a lot of crap injected in to me, and I don't know what is working and what is not, but I have had a great response. The cancer in the lungs is gone, as is the cancer in the lymph nodes. There is one spot on my liver and that has shrunk in half. Sometimes it takes a while to find the right combination and it is frustrating, but maybe it is time to get a second opinion as to options available. Get copies of all Cathy's reports and films (chest x-rays, CAT, PET, bone scans, MRI's) if she doesn't have them yet. She will also need the original slides of the biopsy. Her oncologist will know where that. See if you can make an appointment with one of the larger centers in your area - (Sloane, MD Anderson etc..) Just so you know, in September, I could not walk from my bed to the bathroom without stoping to catch my breath. Last month, I painted my daughter's bedroom by myself, and I have been raking the yard (slowly but surely). She CAN turn it around and have a very long and wonderful life. Cathy is very lucky to have you as a friend. She is in my prayers.
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