 |
11-21-2008, 01:39 PM
|
#1
|
|
Senior Member
Join Date: Jun 2008
Location: NY
Posts: 81
|
jittery
Hi guys,
My mom had a CT scan done on Tuesday for spots in her liver. She gets her results today, I'm not too optimistic because i saw that there were two nodules reported on her mri from last year.
I called her and she was in the waiting room waiting for my dad to drive there from work. I can just see her there anxiously waiting by herself and i feel increadibly guilty for not being there for her.
I just left a message on her doctors answering machine. I'm trying really hard to keep on top of her situation and keep myself together and keep my school work together.
I'm trying not to panic, trying to breathe
__________________
Hi i'm Sue. I've been part of the her2support family since 08'. My amazing mother Hong was her 2 stage IV 9 years and bravely earned her wings, I still love this board and continue to her fight. Plz reach out if you want to connect:)
|
|
|
|
11-21-2008, 02:46 PM
|
#2
|
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
We are here, taking a deep breath with you. Keep the faith. Let us know what you find out. Like we said before, it is probably a relief to your mom to know that you are continuing with your school routine. Please don't feel guilty.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
|
|
11-21-2008, 03:39 PM
|
#3
|
|
Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
|
Hi Sue! Like Bonnie said, it's important to keep up with your school-work and I'm sure that's what your mom wants. Try not to feel guilty. Your mom knows you wish you could be there. Please know that you and your mom are in our thoughts and prayers.
__________________
For Nicola
|
|
|
|
|
11-21-2008, 05:04 PM
|
#4
|
|
Senior Member
Join Date: Oct 2007
Posts: 1,851
|
Sue,
You are a wonderful daughter. I'm praying that your mom's scan turns out to be okay.
And as we mentioned before, the next time we have a New York get-together I hope you and your mom will be able to make it.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
|
|
|
|
|
11-21-2008, 07:51 PM
|
#5
|
|
Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
|
Keep taking deep breaths and think positive thoughts. You are such a wonderful daughter, I am happy for your mom.
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
|
|
|
|
|
11-23-2008, 08:20 PM
|
#6
|
|
Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
|
Hi Sue!
You just keep in breathing .... not short shallow breaths, but nice deep ones, ok? And when you are breathing, think about that breath.
Hang in there.
You are such a loving and caring daughter. How lucky your parents are.
Aloha,
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 10:42 PM.
|
Linear Mode
