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08-11-2008, 06:55 PM
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#1
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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Nasty rash
I had my port out last week, thinking that the bad stuff is behind me and of course trying not to look at anything ahead that may be scary when blam, I got this nasty post surgery rash. I have itchy bumps on my chest, neck, face and 1 arm. I also had welts around the steri strips by the incision. The welts have gone down but my face is a mess. It's hard to go to work looking like I have some horrid 3rd world disease.
Has anyone had anything like this? The surgeon had no idea and was going to call a dermatologist but i haven't heard back from her yet. If anyone has any ideas I would really appreciate it
Thanks so much
Henny
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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08-11-2008, 11:43 PM
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#2
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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The only reaction I ever had was to the tape after surgery. I ended up with red skin and blisters where the tape was. So after that i only used paper tape and eliminated that problem.
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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08-12-2008, 05:34 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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It sounds as if you had an allerigic reaction to a medicine they used. I would try to figure it out.
Best wishes,
Barbara H.
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08-12-2008, 06:08 AM
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#4
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Senior Member
Join Date: Apr 2007
Posts: 292
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Kathy,
I was going to say "tape", but Harrie beat me to it! Call your surgeon and see if you can use cortisone cream on it until you see the dermatologist. That will at least help with the burning.
Take care,
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
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08-12-2008, 08:03 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Welcome to the world of cancer... like you said, you look forward to healing and BLAM!
I too had a nasty rash ... I get little bumps from tape. There are non-allergy kinds that don't stick so well...
Did you finish your Herceptin ?
I had skin issues on and off while I took Herceptin. A benadryl tablet always did the trick to stop the rash from getting worse. Ointments did not really work. However, ice was fabulous- I had the rash all over my arms and chest and neck and the back of my knees. I would rub ice cubes until they melted. The "freezing" would completely stop the itch and lessen the swelling. I rubbed the ice maybe 10 times a day. I know thats a lot of time and maybe not feasible at work- but you gotta do what you gotta do. I also made sure my nails were cut SHORT so that I could not scratch hard.
I still have one little spot of "elephant skin" that just won't go away- and its been two years since herceptin. The sun also makes it worse... did you have even minimal exposure right before or after the port removal ? I still get red and blotchy (and I used to tan really well)
So your rash may have been from the tape- but with all the stuff you have put in your body- it may be difficult to pin down the real culprit.
Hope you get better soon-
Maria
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08-12-2008, 08:22 AM
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#6
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Did they inject something prior to the port removal that you could be allergic to? Or maybe it's the tape?
As suggested earlier, Benedryl might offer relief.
Let us know.
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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08-12-2008, 06:05 PM
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#7
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Senior Member
Join Date: May 2008
Location: Oregon
Posts: 110
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Thanks everyone for your suggestions. Benadryl seems to be helping and also the cortisone cream.
I'm thinking maybe it was a reaction to the tape on my arm and on the incision and also to the betadine they painted all over my chest and neck.
I finished Herceptin in June and oddly today my fingers started hurting and cracking again. I guess like Rosanna Danna said "it's always something"
Henny
__________________
Henny
Dx 3/07 IDC and DCIS Her2+ ER- PR-
Stage IIb 1/15 nodes
A/C, Taxol, Herceptin
Bilateral mastectomies with recon
Zometa 2/yr for 3 yrs- finished 8/2011
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