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08-20-2008, 03:17 PM
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#1
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Speeding up second opinions
My friend who has had a reoccurance is trying to get scheduled to go to MD Anderson for a second opinion. They are holding off on her surgery here till she gets the second opinion. Our Oncologist was suppose to set this up. It has been a week now and our Dr. assistant called her today and said that they still have not heard back from MD Anderson. She also said that MD Anderson will drag their feet in getting back to them unless she is planning on taking her treatments there. Do any of you have any suggestions or experience on how to deal with this. I know it took them forever to get my brother scheduled at MD Anderson and I don't think it's right, time is ticking and they don't seem to care...sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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08-20-2008, 05:53 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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She should call herself and if she doesn't have the confidence to do so, you should volunteer to call for her (she should be present because sometimes you need some personal information like SS# etc for billing).
Time's a wastin' and she should take the bull by the horns.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-20-2008, 05:57 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Sherry,
Why not UCLA or Stanford? Doesn't she live in California?
Karen
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08-20-2008, 06:36 PM
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#4
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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We are in Louisiana, 6 hours away from MD Anderson in Houston..sherryg683
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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08-20-2008, 06:58 PM
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#5
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Sorry Sherri, for some reason I thought you lived in Los Angeles.
Karen
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08-25-2008, 01:07 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Sherry
Wondering how you are making out with speeding things up?? Post when you have more information, I am routing for her>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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