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06-26-2007, 06:20 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Living With Advanced Breast Cancer - LBBC
CONFERENCE FOR WOMEN LIVING WITH ADVANCED BREAST CANCER:
ENHANCING YOUR HEALTH AND QUALITY OF LIFE
Saturday, July 14, 2007
Philadelphia Marriott West, West Conshohocken, Pa.
http://www.lbbc.org/event-detail.asp...erences&id=163
Conference for Women Living With Advanced Breast Cancer: Enhancing Your Health and Quality of Life
Please join Living Beyond Breast Cancer for the Conference for Women Living With Advanced Breast Cancer: Enhancing Your Health and Quality of Life, from 9:00 a.m. to 4:00 p.m. on Saturday, July 14, at the Philadelphia Marriott West, in West Conshohocken, Pa, outside Philadelphia.
This is LBBC’s first conference focusing exclusively on the needs of women living with advanced (metastatic) breast cancer. The full-day program, planned with data from our April 2005 survey, is packed with the information you requested for information, support and practical resources.
The morning plenary session, featuring Julie R. Gralow, MD of the University of Washington School of Medicine and Fred Hutchinson Cancer Research Center, will explore the latest treatments, open clinical trials and research developments. After lunch, choose from among four workshops on symptom and side-effect management, clinical trials, the emotional impact of your diagnosis and end-of-life concerns. To provide more time for connecting with others, moderators will jump-start four break-out sessions in the afternoon on coping and finding support, communication with loved ones, financial planning and health insurance issues and employment concerns and disability. Conference participants will drive the focus of the sessions. We will conclude with a closing plenary session on how to integrate what you’ve learned into your day-to-day life.
Registration and Travel Scholarships: $35 per person includes continental breakfast, lunch and networking. We are offering a limited number of travel scholarships and fee waivers. Access the scholarship application at our registration page, or call us at 610.645.4567 for more information. Please visit
http://www.lbbc.org/event-detail.asp?c=educational&t=participate&sn=conferen ces&id=163 to learn more or to register or call LBBC at 610.645.4567. We prefer that you pre-register, but we welcome walk-ins.
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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06-26-2007, 11:18 PM
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#2
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Thanks Joe -
Hope some of those living in the Pennsylvania area can attend.
Also hope that there will be an event of this kind here in the Seattle area. With Dr. Gralow involved, maybe she will get them to do it.
(She is my wonderful med onc - by the way!)
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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07-07-2007, 12:43 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Southern Florida
Wish there were one of those down here in southern Florida! Sounds quite great. Would love to participate!
BTW, Dr. Mark Pegram is relocating to the University of Miami, Sylvester Comprehensive Cancer Center. Got a letter from him as a prior patient. Wish this site had SPELL CHECK!!!!!!!! Just dreaming out loud. Any one hear?????????
Pegram's new # (305) 243 - 4909
Sendingloving energy to all my sweet Soul Sisters... ANDI 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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