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Confusion about taking tamox....thoughts
I read on this board in the past week about NOT being a good canditate or taking tamoxifen would not really help with ER status of a certain number and the person opted to remove her ovaries. Since then I drove to my sons first basketball game (surprised him) leaving at 1 pm Saturday and not getting home until Sunday 4 AM. I am just not rested up after Monday work day....Whew!!
Anyway, my ER status in the beginning was ER 30% and after chemo, then my final pathology after masectomy changed to ER 70% or about that (I would have to re-read my signature to remember exact number  ). My PR in beginning was negative and then changed to PR+ 2, so I am now wondering about taking tamox.
Anyway, my OCD mind just thought about it again and the people on this board are BRILLIANT, DIVERSED, EXPERIENCED AND DEPENDABLE more then doctors at times. Been there, done that, hine site is 20/20 kind of thing and being your own patient advocate and making the best decision possible on what and what not to do is a MUST in my humble opinion.
Thank you in advance.......I would be lost without this board!!!
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant
9/2012 Pre-adjunctive TCH chemo.
12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.
12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+
2/27/13 6 weeks of IMRT radiation finished
2/2013 Started on Tamoxifan 5 years.
8/2013 will take last Herceptin, 17 treatments total every 3 weeks.
BRCA1 & BRAC2 - Negative
August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.
3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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