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Old 04-11-2011, 03:53 PM   #1
krisvell
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Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
Brain Met - Getting Nervous

Hi,
In two weeks, I go for a brain MRI to see the results after two Gamma Knife treatments. They mentioned there's a 90-99% control rate for the first year and a 66% chance for shrinking. After one month, the volume shrunk by 30%. So that's good.
I am getting nervous waiting and wondering what to expect. My eyesight has gotten a little better. The numbness in left leg hasn't changed but they said it probably wouldn't; permanent nerve damage. I've been reading the signatures and I am hopeful.
Would you share what outcomes you've had with Gamma Knife and how it affected any symptoms from Brain Mets?
Hugs (and thank you),
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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