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Old 06-20-2010, 12:42 PM   #1
Emelie B
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Posts: 170
Second opinion

Thank you to everyone for their input. I have scheduled an appointment with a very knowledgeable oncologist at the University of Colorado cancer clinic right after I get back from visiting the new baby.
I also have a stress test and an echo scheduled for mid-July. I have continued to walk a minimum of 45 minutes everyday and do yoga twice a week. Before recurrence I worked out at the gym 3-4 times a week and was riding and running 15-20 miles a week, so I think my heart should be back to normal soon.
Anyway, I just feel very uncomfortable discontinuing Herceptin at this time. Maybe I am just paranoid, but I have not seen anything to indicate that I should stop right now.
My husband and I went to a workshop "Couples Facing Cancer" yesterday and we both found it really helpful. If any of you have a chance to attend a similar workshop, I highly recommend it.
Will keep you posted as to what the other onc says.
Best regards to all,
Emelie
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Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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Old 06-24-2010, 10:03 PM   #2
Jackie07
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Re: Second opinion

Thanks for the update, Emelie. We'll be looking forward to your upcoming postings. And thanks for the tip (about 'couple's counseling'.)

You've mentioned about the stress test and echo. It is pretty much standard procedure during chemo - to make sure your heart is functioning well. I had to drop out at 23 weeks into chemo/Herceptin because my Muga had dropped. I think whenever the score drops more than 10%, the treatment is temporarily halted until the heart recovered.
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