HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 07-20-2010, 04:41 PM   #1
suzanne38301
Member
 
Join Date: Jul 2010
Location: Bradenton, Fl
Posts: 8
new to room

Hello everyone I am new here. I have just finished Chemo and now on Herceptin for a year and tamoxifin for 5. I was just wondering how everyone is coping? I was told my cancer was very aggressive and I often worry about recurence. Am I crazy for being worried?
Also I am thinking about reconstruction. What do you think?
__________________
Age 36
Diagnosised- Dec 23, 2009 IDC
tumor size 2.1 ER+, PR+, HER2+++. Grade 3 Stage 2, Node negative.
Jan 14th, 2010- Bilaterial Mast.,
Feb 2010 began Chemo( Taxoter, Charboplatin/Herceptin)
June 1st, 2010 Finished Chemo
June 12th 2010 began Herceptin every 3 weeks for a year and tamoxifin daily
suzanne38301 is offline   Reply With Quote
Old 07-20-2010, 09:19 PM   #2
ElaineM
Senior Member
 
ElaineM's Avatar
 
Join Date: May 2006
Posts: 3,142
Wink Re: new to room

You are normal. Most people worry about the cancer coming back.
The best things you can do for yourself now are to eat healthy, try to reduce stress and get enough exercise.
It all helps. All the best to you.
__________________
Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 07-21-2010, 04:46 AM   #3
Pam P
Senior Member
 
Pam P's Avatar
 
Join Date: Sep 2005
Location: MN
Posts: 731
Re: new to room

Elaine is right - the best thing to do is live your life and enjoy it fully doing good and healthy things for yourself.

Yes the worry is normal. Cancer diagnosis changes your life. I think the worry takes a smaller part of your energy and thoughts gradually as you go along and you find that you are moving on and living your life.

On reconstruction - I had a mastectomy. I chose not to have reconstruction done. Because I didn't want any more surgery that wasn't necessary that was my primary reason- and also I'd heard from others too that the procedures for recon were more painful and longer recovery than the mast. itself. I wear a prothesis in my bra. It fits well and looks natural. I've been happy with my decision. Now that's just me ---- many people decide to do the reconstruction for various reasons. There's no right or wrong in the decision - it only matters what's right for you.

Wishing you good health. Pam
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
Pam P is offline   Reply With Quote
Old 07-21-2010, 08:26 AM   #4
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Re: new to room

Suzanne,
First of all I am sorry you even need to be here and ask these questions, but life has given you a new road and journey to take. You have found a wondeful place to get lots of great information.

The hardest part is behind you (chemo) the herceptin treatment you will find much easier.

I know many of our members have had the surgery an you will glean lots of information from them.

You are so young and have so many years ahead of you.
One of my best friends had surgery a year ago and now a year later has had reconstruction. She is 67 years.
So each women needs to make the decision based on what makes her feel best.

Welcome and I send you best wishes.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 07-21-2010, 09:13 AM   #5
Emelie B
Senior Member
 
Emelie B's Avatar
 
Join Date: Jan 2010
Posts: 170
Re: new to room

I too am sorry you have to join us, but welcome to a very understanding, brave, supportive, knowledgeable group of cancer survivors.
Yes, worry is constant in the beginning but does fade as time goes on. Cancer has changed your life forever and you can decide to make it a postive change or not. I always look at cancer as my wake up call to live my life well, love those around me, and laugh as much as I can.

I chose not to have recon because of my age, tired of doctors and surgeries, and my husband and I just did not feel it was important. I have a "sticky boob" that sticks on my chest and works just wonderful. I call her Betty.

The other ladies are very right in telling you to eat well, get plenty of rest, and keep exercising. Walking is wonderful.

Please let us know if you have any more questions, comments, or thoughts as we are all here to support you on your journey.
Best regards,
Emelie
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
Emelie B is offline   Reply With Quote
Old 07-21-2010, 12:07 PM   #6
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Re: new to room

Hi Suzanne,

I agree with everyone, we all still worry at times about a recurrance but it's important to not allow the fear to rule you while still remaining vigilant to any changes or symptoms.
I'm five years out but have had a few scare's which turned out to be benign, most of us have!
I had a lumpectomy so did'nt need recon so cant help you with that but look forward to chatting with you more
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 03:36 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter