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07-13-2008, 05:26 AM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Good Morning Friends
Good Morning Friends........
I just wanted to say "good morning" to each of you today and to say that your friendship is so special and important to me. Honestly, I don't know what I'd do without each of you.
I ask God to bless each of you this day. I ask Him to give you His peace today. For those of you going through treatment and hard times I pray that today would be a good day ..... a peaceful day ..... and that we here at her2support can be a source of encouragement and love to you.
I love you guys........I'm thankful for you all........ and I know that even though life can be, and often times is a struggle, God gave each of us EACH OTHER to help and encourage on the journey.
Hugs and Peace to you all....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-13-2008, 05:37 AM
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#2
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Hi Mary Jo,
A nice message to wake up to. Thank you.
I am grateful for the website and thankful to all of you.
Wishing you all a good day and peaceful moments.
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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07-13-2008, 05:55 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Thank you for your message Maryjo. Indeed it is a beautiful day. I woke up to cool breeze, sunny skies & birds singing. A good day to give thanks for life... and this support on this site!
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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07-13-2008, 05:57 AM
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#4
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Senior Member
Join Date: Sep 2005
Posts: 589
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Marejo,
Thank you for such a wonderful thought to wake up to. I couldn't agree more. This is a great site with wonderful, caring people that have made a HUGE difference in my (and Caryn's) life. God bless all.
Eric
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07-13-2008, 07:26 AM
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#5
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Good morning Mary Jo
Its so nice that you always do this. In our busy lives, its great you take the time that I don't to remember our Her2 family.
Have a great day (everyone)
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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07-13-2008, 08:38 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Thank you, Mary Jo! I love your posts. You are like a ray of sunshine and full of wisdom, besides. You have a good day, too, and many more good tomorrows! Hugs, Tricia
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07-13-2008, 08:41 AM
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#7
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Mary Jo,
Good morning and thanks for the special greeting. Hope you are doing well. Be sure and give us an update on your progress.
Wishing everyone a spectacular day!
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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07-13-2008, 08:54 AM
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#8
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Marejo,
What a wonderful message to receive this morning! May God bless you and thank you for your loving support and encouragement.
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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07-13-2008, 09:17 AM
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#9
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Gerri,
I'll give you an update right here so I don't "bog" down the boards with my DIEP stuff.......But since you asked I'll give you an update.
I am 26 days post op and doing great. My new breasts are very nice - very symmetrical and contoured nicely. So much so that I will not need a stage 2 surgery. They are "perfect" enough for me. I recovered very nicely from the surgery and am back to my full exercise regime and BACK ON THE HEALTHY TRAIN of eating. That feels the best. As I think I've shared.....I deviated from my healthy eating plan to gain some weight for the surgery (8 pounds to be exact ) which helped to have enough fat for not only 2 "B" breasts but enough fat to do the contouring also. Although it was nerve wracking for me to gain that weight (although the food tasted awesome) and I felt like a beached whale  I'm happy now I did it to avoid that second surgery. Of course, there are always things that could go wrong where a second phase would be necessary, in my case that wasn't so. So....I'm back to eating SUPER healthy and I couldn't feel better. I've dropped about 5 pounds now (not from removing my abdominal fat either - as so many think - the abdominal fat was only transferred to another part of my body, not removed for good) and I'm back to not only my powerwalking (for about 2 weeks already) but also my intermittant jogging (as of today). I'd still like to lose about 5 to 8 more pounds and don't doubt for a minute that I'll do it.
I'm happy I did it and honestly never realized how much I missed having my breasts until I got them back. These breasts are all me - fat and skin - are warm and even jiggly! (sorry to be so graphic ) On my radiated side though, I did develop a small area of fat necrosis (a hard area of fat that didn't get enough blood supply) - about golf ball size - but that may soften in time - or so they tell me. AND, for added measure, my tummy is hard and beautiful - how sweet is that?
The doctors office has asked me to speak to women considering DIEP with Dr. Hijjawi, in our midwest region, to share my positive experience. I know how much that benefited me in my decision process so will happily share. My experience was incredibly positive. From surgery to recovery to results and the best part - my plastic surgeon is not only a gifted, intelligent man BUT a super caring, kind man who listens - answers all of your questions and is a perfectionist to boot. My first woman to speak too is from Iowa (I'm from Wisconsin)
So there you go Gerri - sorry I'm a bit winded - LOL - but you asked.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-13-2008, 09:47 AM
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#10
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Hi Mary Jo,
What great news! How thrilling this must be for you. I know you put a lot of thought into going through with reconstruction and I'm happy to hear that you had such positive results. I'm sure the fact that you take such good care of yourself was instrumental in your quick recovery.
It is wonderful that you are willing to share your experience with other women - we all need positive input when dealing with decision making. You have such a beautiful spirit and such a caring way about you - truly a very special person.
Post a picture when you have the 'girls' all dressed up.
Take good care,
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
Last edited by Gerri; 07-13-2008 at 10:13 AM..
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07-13-2008, 11:34 AM
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#11
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Senior Member
Join Date: May 2006
Posts: 3,142
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Good Morning Friends
Good Morning from Hawaii.
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07-13-2008, 01:47 PM
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#12
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Senior Member
Join Date: Jul 2007
Location: BridgeView IL
Posts: 116
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Hi
I also feel as you do. Thank you for your post
Tamara
Invasive Ductal Carcinoma 10/2006 HER2+
SOS Sister of IL
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07-13-2008, 08:42 PM
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#13
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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What a lovely message to read - just what I needed tonight. I'm so happy about your good news....enjoy being jiggly!
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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07-13-2008, 08:52 PM
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#14
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Mary Jo,
So true, we are so very fortunate to have each other.
I am thrilled your surgery was a grand success and
most important that you are happy!
Big Hugs to you,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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07-13-2008, 08:59 PM
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#15
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Maryjo,
Thanks for the wonderful greeting! And thanks also for sharing your experience here and with me personally.
I hope you have a wonderful week!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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07-13-2008, 09:06 PM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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And a belated Good Morning to you Ms Sunshine! WHat a great message you wrote for us all!
Sounds like you are doing extremely well! You are an excellent advocate for the DIEP!
Aloha,
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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