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06-17-2008, 09:29 PM
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#1
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Member
Join Date: Sep 2005
Location: PA
Posts: 15
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Pulling my head out of the sand to give a shout out.
Wow, has it been a long time since I have been to this site. As my title says, I have stuck my head in the sand when it comes to cancer, trying to ignore it and hoping that it will ignore me. I wanted to give all those diagnosed after me some encouragement with my story. I remember looking at how long people were NED to comfort me when I was scared out of my mind, not knowing how my life would turn out.
I am a 3.5 year cancer survivor and most people would not know that I ever had the battle of my life unless I tell them. I am no longer known as the teacher that wore the bandanas at school. Everything is going well (except for the extra 30 pounds). I was so happy to see my son complete kindergarten. That was always a big worry of mine that I would miss his first day of school. This summer I will complete my masters degree. I thank God daily for my health good fortune and I pray for us all.
It saddens me to learn that we have lost some amazing HER2 heros. I cannot tell you all how much encouragement those heros offered me when I was going through the worst of it. I believe we will be having some HER2 parties someday in heaven when we all meet.
At this point in my life I can say that cancer has made me a better, stronger, down to earth person. I am looking forward to the big 5 year anniversary!
A BIG SHOUT OUT TO ALL OF US THAT ARE FIGHTING TO KICK HER2 IN THE BUTT!
God Bless,
Lori
__________________
1/05 Diagnosed at 31 years old
2/05 Partial Mast, 8/18 nodes positive
Stage IIIA,her2, er/pr+, 9/9 Richardson scale
3/05 Chemo Ad/Cytox
6/05 Weekly Taxol/Herceptin
Continued Herceptin for 1yr
9/05 33 rads
5/06 Hyst. and bilat oph. due to susp. cyst on ovary
Tamox then Arimidex now Femara
NED scans every 6 months
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06-18-2008, 05:06 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Great to hear of your good health and happiness. Congrats on your masters degree. Wishing you continued NED scans!
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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06-18-2008, 06:04 AM
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#3
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Senior Member
Join Date: Feb 2008
Location: Newnan, Georgia
Posts: 80
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Lori, congratulations!!! Your post has helped me so much. I was feeling a bit anxious this week, go to onc on Friday for results of bloodwork. Thank you for your encouragement and update.
Nancy
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Nancy
Diagnosed 4/06, age 45
IDC, 3.5 cm, 4/7 positive nodes
Stage IIB
Her2++, ER & PR++
Mastectomy, 4 AC, 4 Taxol & Herception for one year
Radiation
Ovaries out 4/07
Currently taking Arimidex and Zometa every 6 months
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06-18-2008, 08:27 AM
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#4
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Lori, what wonderful news! You sound so happy and content and HEALTHY!!!!!! thanks for sharing, ma
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MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-18-2008, 12:35 PM
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#5
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Lori
Glad you took your head out of the sand to shout out, do not want you choking! Tehe! Glad things are going so well for you. An early congrats on that degree, Lori, another milestone for you to rejoice. Here is to the future. Prayers and Love.>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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06-18-2008, 03:36 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Lori, Congrats! Wow, you have accomplished alot in 3.5 years! Way to go!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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06-18-2008, 09:18 PM
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#7
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Senior Member
Join Date: May 2006
Posts: 3,142
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Pulling my head out of the sand to give a shout out
Congratulations on your improved health and on your masters degree. Hugs to your son.
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