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Old 12-31-2007, 05:48 PM   #1
Faith in Him
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Skin rash - Part II
Well, I saw my regular onc today. I have been referred to the surgeon for follow up. I guess they will do a biopsy. I looked at pictures of skin mets on the internet and I have to tell you, it looks like what I have.

I'm not even done with herceptin yet. I'm feeling really discouraged right now. Doing alot of praying. If you pray, please say one for me.

Hugs,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 12-31-2007, 06:24 PM   #2
Mary Anne in TX
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Hi and Happy New Year! I know that this development isn't what you wanted, but you have some beautiful reasons (great picture) to fight like the dickens! I'm so glad that your onc got on it right away and you're doing the biopsy soon. Just knowing and getting into motion with treatment will get your hope and thinking back on track. I'm sorry you even had to hear those words and have to keep at it, but you'll surely have my prayers and positive thoughts headed your way! Lots of love and good cheer for a peaceful and hopeful New Years Day with your family. God can take the worst mess and turn it into an awesome miracle! I'm believing you'll one of his best miracles! ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-31-2007, 07:47 PM   #3
Mary Jo
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Hi Tonya,

Sending hugs to you friend and yes, I do pray and have said one for you.

Sending love and asking the Lord to hold you close as you wait.

Love,

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-31-2007, 08:24 PM   #4
Bill
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Happy New Year, Tonya! Many prayers and warm wishes are coming your way. May God give you and your family strength and comfort as you deal with the the uncertainty of the the future. Please know that we are here for you. Fight the Good Fight, Bill
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Old 12-31-2007, 09:22 PM   #5
Lolly
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Tonya, I'm sending prayers your way for strength and courage. I hope it's not mets, but if it is I'm living proof they can be treatable. I recurred 6 months after finishing treatment for primary disease, mets to lymph nodes and skin of scar line, and although I'm still fighting them it's been almost 7 years since that initial recurrence, with mostly great quality of life and I'm still encouraged by new treatments in the pipeline. I know it's a blow to comtemplate recurrence, just try to take one day at a time for now and stay strong.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 01-01-2008, 06:49 PM   #6
penelope
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Prayers.....done. I am sorry you are dealing with this, especially around the holidays.
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