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Old 12-29-2007, 04:00 PM   #1
LOPSIDED
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Have You Noticed People Avoiding You

Telling People That My Cancer Has Become Active For The Third Time Has Not Been Easy. I Understand That People Are Sometimes At A Loss As To What To Say, But I Have Noticed Some People Can't Get Away From Me Fast Enough. Sure They Are Polite And Tell Me How Sorry They Are And Of Course I Get The "you Can Beat It Again Speech." I Had Kept In Touch With Some Of My Co-workers Thru E-mail. I've Noticed Some Of Them Have Not E-mailed Me At All Since My News. Part Of Me Is A Little Angry, But Then Again I Don't Know What To Say Myself. I Make Great Effort Not To Complain And To Stay Positive So That I Am Not A Downer To Be Around. Anyway I Knew I Could Vent Here..........Thank You, All You Wonderful Women Who Inspire Me With Your Courage And Strength.
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SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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Old 12-29-2007, 04:26 PM   #2
Chelee
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LOPSIDED, I know exactly what you mean. I'd had the same thing happen to me and I too make sure I don't ever bring up anything related to my cancer nightmare unless they ask me about it. I am always walking around with a big smile on my face...and I come off as very positive to the people in my life. (The only place I bring up anything related to my bc is on the boards or in a private PM.)

From the minute I was Dx I can't even tell you how many people walked out of my life. I went through my entire journey alone with the exception of this board and one other. I thought now that I have hair and look back to *normal* people might start coming back around...but that has not happened. When I do accidently run into people I know...I get ALL kinds of excuses from them as why they haven't called or came by. (They are all very lame excuses at that.) All I know is when I needed people the most they disappeared. I am so sorry to hear you have been dealing with this too...its not easy. I've heard so many reasons as to why people do this to us once we are DX...but I'm not sure I am buying any of them? Your not alone on this one...you certainly came to the right place to vent this.
Hang in there.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-29-2007, 05:58 PM   #3
Mary Jo
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Hi Sheila.

I'm happy you decided to "vent" to us here. "Venting" is good and sometimes, through this journey, our feelings get hurt.

It isn't you...........it's people that don't know what to say.........they don't know how to handle themselves, so it's easier for them to just not acknowledge the person. It's too bad is has to be that way but sadly it does happen. I'm sorry that is happening to you. I'm also sorry this has been your experience too Chelee. How painful these experiences must be for you.

Sending you both my love and blessings of Peace,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28

Last edited by Mary Jo; 12-29-2007 at 06:01 PM.. Reason: wanted to add something
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Old 12-29-2007, 06:49 PM   #4
PinkGirl
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Hi Lop
I have only lost one friendship since being diagnosed and I think
this person just got "tired of me". Some of my other friendships
have changed but the friends are still there for me.

I think this might be a reflection of our society's attitude to illness
in general. People have a very difficult time dealing with the "randomness"
of cancer. Deep down they want to think that we did something that
caused our cancer, and if they don't do what we did, they won't get it.

Just my opinion, but I think we are a big reminder that this can happen
to anyone.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 12-29-2007, 07:39 PM   #5
Yorkiegirl
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Lopsided I know what you mean.

When I was Dx'd 2 1/2 yrs ago, I lost two friends, both of whom I never in a million years would have thought would have been that way towards me. It hurt very much.

Glad you got your vent out, it always helps.
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Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 12-30-2007, 07:02 AM   #6
mrsd
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Smile Very interesting thread lopsided

Thankfully I have only one lost friendship, I choose to think she was never really a friend. I was always there for her especially when her marriage fell apart and she left her husband, I too thought she would be there for me. My real friends, and co-workers have supported me and my family throughout this very bumpy ride, both when things were great, NED, and when I recurred. Without thier support I don't know what I would have done, my family have not and do not really discuss my illness, which I accept and hold no hard feelings about, for them it's just the way they have to deal with it. But as I said this is a very interesting post and I am curious to see the responses of others.
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Intial Dx Sept3,2002, age 39
Masct/ Sentinel Node Biopsy Sept 11,2002 node negative
ER/PR- Her2+++, grade 3
Started AC Chemo Nov 2002, 4 rds
2003 NED
May 2004 reconstuction, saline and later silicone implant
Aug 2006 Dx recurrence, lymph nodes chest/lungs/sternum
Dec 2006 Herceptin q three weeks
May 2007 bone mets to sternum
June 2007 aredia for bone mets
June 2007 radiation to sternum X 5
June 2008 slow progression of lung met, all other mets NED, continue Herceptin, Aredia, add Xeloda
July 08 Stopped Xeloda, severe side effects from the drug, but it did a fantastic job after only 12 days at least 50% reduction
Feb 09 Started Navelbine with herceptin, slight progression in lungs.
July 09 - Nov 09 had a Navelbine holiday...
Nov 09 back to Navelbine, Herception
Feb 10, lungs have improved but 4 small lesions on liver, started Taxol, Herceptin....
Taxol not the magic drug for me
Continuing Herceptin,Aredia,and adding Xeloda once again..reduced dose
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Old 12-30-2007, 09:04 AM   #7
BonnieR
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The psychologist at the cancer center said to me "when you get cancer you learn who your friends are". And she was right. A few people dropped off the face of the earth. But more heartwarming was to find some suprising support from unexpected sources. More "casual" friends who really stepped up and became great sources of encouragement. Human nature sure is interesting!
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 12-30-2007, 09:13 AM   #8
LOPSIDED
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Thank You For Your Kind Words, Your Responses Made Me Feel Better. I Am Lucky To Have A Lot Of Support From My Boyfriend. God Knows He Didn't Sign Up For All This Drama. He Has Done So Much For Me And I Know I Can Count On Him. There Are Several Friends That Really Surprised Me, One Is A Great Cheerleader When Things Are Good & I'm In Remission. But When Bad News Comes She Disappears--no Calls, E-mails Nothing. She Only Pops Back Up If She Has Heard Thru Someone That I Have Improved. Another Person Will Show Up The Next Day If I Call And Say I Shaved My Head. She Makes Me Feel Like A Exhibit. I Only See Her If She Thinks I Have A Great Side Effect To Show Her. But I Am Not Mistaken---a Number Of People Have Dropped From My Life. I Guess I Can Look At It Like This---I Have Been Given The Gift To See Who My True Friends Are And Maybe This Has Shown Me How To Be A Better Friend. The People That Have Left My Life Are Not Bad People. I Just Hope For Them, When They Have To Face A Crisis And They Can No Longer Run From It --That They Too, Will Find Strength & Courage & Grace.
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SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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Old 12-30-2007, 04:33 PM   #9
charlotte
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Ii can relate to this thread, big time...I have a few friends who have stayed the course..... I also have someone in my family who goes to the extreme and only wants to talk about " what did the Dr. say?", " and I love this one.... " How long do you think you are going to live?".. I have gotten my husband to run interference for me as I think this is getting to much in my face.. so he now tells them, if you want to know anything about her condition, ask me... not her..
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Old 12-30-2007, 06:39 PM   #10
Bill
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Hi Sheila! I'm sorry to hear about some of your "friends" dropping out. I think they call them "fair weather friends". Thank God you have a good boyfriend. Please know that you have alot of friends here, even though we can't be with you physically, from now on we will be with you in spirit. We will think of you often, pray for you often, and miss you when you do not post on the site. Love, Bill
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Old 12-30-2007, 06:44 PM   #11
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Hi Charlotte! Your post actually had me shudder, I guess that's the feeling. We had similar comments thrown at us, as many of you probably have. It's good that your husband has given you a wall of protection. Stay strong, Bill
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Old 12-31-2007, 02:32 AM   #12
sarah
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It's not only illness that scares people away. We have friends who've lost their husbands and for about a year afterwards my husband and I were among the only people who had them over for meals and went on trips with them, etc. Eventually their friends came back but it took time. Handicapped people have the same problem - no one wants to look at them or smile or say hello to them.
Maybe we should make up a "letter" that explains what we would like - hugs, no talk about illness or death or..., go for walks, go to the movies, share meals together.... Something we can hand our friends and family. My brother didn't speak to me after I told him until I quoted Mark Twain and said "hey I'm still here!" then he called but he doesn't stay in touch much. he's afraid.
I know the first time around all my friends called to ask me what I had, what was I going to do, how could they help and of course every time I had to talk about it, I was sad so finally I emailed all my friends (hope they weren't offended!) to say I didn't want to discuss my illness but would be happy to talk to them about other things.
None of us are pros at saying the right thing. I just hug people and let them talk if they want to or not.
I think it must be awful to be alone and sick or sad. Women particularly need company.
Books have helped me tremendously through this ordeal and I have a husband who stands by me.
Here at least, we have lots of friends who are genuinely there to help us and understand and isn't that a wonderful gift.
Happy New Year to all.
hugs and love
sarah
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Old 12-31-2007, 04:22 AM   #13
fullofbeans
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I very much relates to many of the above posts and for me too I have seen people that I knew disappear, and some other stepping up.

What I found is that some people are very keen to help at the beginning doing more that is even required and being almost more emotional about it than yourself as if they were living it..then after few weeks/months you only hear about them rarely..that pissed me off I have to say because they almost make you feel bad for feeling bad for you and then almost disappear!

I do not agree fully with that "you see who is your friend", I however think that you see their strengh of charactere, just like we do for ourselves, some of us give up even with amazing support around them and some other fight alone.

Now that I am NED and that I look """normal""" I take great pleasure to join sport clubs and meet up with people that knows nothing of my condition (cosmopolite cities like London is good for that). I have asked many of my friends not to tell anyone about it so when I go to parties I do not feel like an untouchable..and yep fed up talking about it specially when you are stage 4 NED people do not know what it involves.
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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