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06-09-2007, 08:50 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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to Joe regarding the emails
Joe,
I know that we had the nasty malfunctioning a while ago but I am still not getting the notification that some has posted to a thread in which I have participated.
I know I have been in and out infrequently lately -problems at home as well as celebrations but did I miss some thread where you explained this or did we get cut off getting them in order to protect oud dear board or do I need to do something to restart.
thank you for your patience with "techy unable" here!
thank you
MCS ( maria)
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06-09-2007, 08:53 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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p.s. Joe,
I checked all the control panels and I'm marked ok to receive the email notifications.
Well, maybe no one wants to talk to me or what I have to merits no comments.
thanks
maria
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06-09-2007, 11:04 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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I'm actually getting more than I should be getting. No big deal, but I have wondered if those who should be getting them were also getting them. I guess they haven't.
Beckie
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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06-09-2007, 11:32 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Maria, When all the problems started I wasn't getting my email notifications to the threads. But now I am receiving all of them...have been for a good week I believe. Since you checked all the boxes in your profile to receive them...that should do it. There must be a small glitch still. Hang in there...maybe someone else has an idea what's going on?
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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06-10-2007, 07:13 AM
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#5
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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Actually, after rechecking, I realize I am no longer getting messages belongiing to others, it was just different than it was before the disaster. Sorry.
Beckie
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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