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06-09-2007, 01:01 PM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Advocacy Opportunities
San Diego Oncology Nurses Symposium
September 30th - October 3rd.
Marriott Mission Valley
We need one local volunteer to assist Christine at our exhibit table.
San Antonio Breast Cancer Symposium
December 13 - 16th
San Antonio, Texas
The HER2 Support Group will pay for your registration. Many local Komen Affiliates offer travel scholarships up to $1,000 to attend breast cancer related meetings. Check your local Komen.
California Breast Cancer Research Program Bi-Annual Meeting
September 7-9
Westin Bonaventure Hotel
Los Angeles
Free
Travel Scholarships available for CA residents
www.cabreastcancer.org
2007 ASCO Breast Cancer Symposium
September 7-8
The San Francisco Marriott
San Francisco
Patient Advocates interested in registering for The 2007 Breast Cancer Symposium should e-mail patientadvocates@asco.org for additional information.<?xml:namespace prefix = o ns = "urn:schemas-microsoft-com fficeffice" /><o ></o>
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A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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06-11-2007, 11:44 AM
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#2
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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I just heard from my local Susan Komen affiliate (Chicago Area) and they are not able to help with travel scholarships for breast cancer meetings. Good luck to others.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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06-11-2007, 01:53 PM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Donna
Go through the national headquarters in Texas...I found it on the internet, the girl I talked to was Kacie...she is over grant money, lots of paperwork but I got a $1000.00 grant....although it does take about 4 months to be reimbursed after the trip.
I ran into the no funds from my local Komen Affiliate....hope this helps, I was at Rush today...looks like I will start going Thursdays now....I was in the waiting room and ran into a lady from Crystal Lake!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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06-11-2007, 02:40 PM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Travel grants
Hi -
Regarding the travel grants, Sandy H and I each took different routes to get ours. Since Sandy was from a more rural area with no local Komen affiliate, she went through the head office in Dallas. Got her grant no problem.
I live in a major metro area (where Komen all began) and was able to get my $1,000 grant from the local office. It may just depend on how many requests they have and how much they have budgeted for those travel grants. The check went directly to Joe, and I don't recall how long that took.
When I called my local Komen office and said I wanted to go as a patient advocate and at the request to help represent a major online BC support group at San Antonio, they almost fell over themselves to get me the application info. We are the type of people they want to give the grants to.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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06-11-2007, 02:49 PM
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#5
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Hi Sheila,
Thanks for the info. I will try for a grant, I love paperwork!
Sent you a private message, dear friend.
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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06-11-2007, 03:11 PM
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#6
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Senior Member
Join Date: Jan 2007
Posts: 138
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Joe,
I could help out in San Francisco. Please let me know what I need to do.
Karen Weixel
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06-11-2007, 03:15 PM
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#7
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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StephN,
Thanks also for your help. You would think the Chicago land area is large enough to help with things like this. They said they had 2 million local requests last year and fund in the area of treatment, ed and screening. They could only fill half the requests.
Onward to National Headquarters!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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