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Old 03-28-2007, 02:34 PM   #1
Grace
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MRI for high risk/new recommendation

Many of you know this but for those of you who don't, here is an article regarding the recent recommendation of the American Cancer Society--that women in high risk groups get yearly MRI (appaently, together with mammogram):

New Screening Guidelines

The American Cancer Society is now recommending MRI screening in addition to mammograms for women who meet at least one of the following conditions:

— have a BRCA1 or BRCA2 gene mutation

— have a relative (parent, sibling, child) with a BRCA1 or BRCA2 mutation, even if they have yet to be tested themselves

— lifetime risk of breast cancer has been scored at 20 percent to 25 percent or greater, based on one of several accepted risk assessment tools that look at family history and other factors

— had radiation to the chest (usually as a treatment for other cancers) between the ages of 10 and 30

— have Li-Fraumeni syndrome, Cowden syndrome or Bannayan-Riley-Ruvalcaba syndrome, or may have one of these syndromes based on a history in a close relative

For some women, however, the ACS says the jury is still out on whether MRI screening is beneficial, even though they have conditions that do give them a higher-than-average risk of breast cancer. The guideline says there still isn't enough evidence to recommend for or against MRI screening in women who:

— have a 15 percent to 20 percent lifetime risk of breast cancer, based on one of several accepted risk assessment tools that look at family history and other factors

— have lobular carcinoma in situ (LCIS) or atypical lobular hyperplasia (ALH)

— have atypical ductal hyperplasia (ADH)

— have very dense breasts or unevenly dense breasts (when viewed on a mammogram)

— have already had breast cancer, including ductal carcinoma in situ (DCIS)


Let's hope our insurance companies go along!
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Old 03-28-2007, 10:16 PM   #2
StephN
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Location: Misty woods of WA State
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Question Anyone had breast MRIs??

I have.

These new guidelines were front page news on my city's paper. Quite a surprise as I strolled through the corridor on the hospital to visit my Dad and seeing those headlines.

In Dec. of 2000 I had a breast MRI - one on each side on different days. This was done between my excisional biopsy and my final surgery. It was my medical oncologist who ordered them. He also wanted to know for staging purposes as I had a PET scan as well. Once the path report was back on the biopsy the fight against HER2+++ began in earnest.

I wonder now if I will get them again under these new guidelines. I will see my med onc in mid April and have this on my discussion list already. She may think that a PET/CT is enough.

P.S. I did not have reconstruction of any kind and have most of my original breasts.
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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