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12-20-2006, 10:40 AM
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#1
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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HOT Flashes & Tamoxofin
Hey Guys,
Have been taking the Tamox for several weeks now, and have been dealing with Lots & lots of hot flashes....I will see my Onc Jan 8th to discuss, but in the mean time. Have any of you experienced this ? And if so any remedies to try ?
Love to all
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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12-20-2006, 12:05 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Taking the drug right before going to sleep vs the morning is helpful. Otherwise, oh well. It gets better as time goes on and is much worse the first few months.
Take heart. In time it will improve. If it is unbearable for you, I have heard that Effexor helps but I have no first hand experience with it.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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12-20-2006, 01:18 PM
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#3
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Senior Member
Join Date: May 2006
Posts: 93
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Susan,
Jill had lots of hot flashes when she started Tamox. She still gets them but not as bad. She takes her Tamox around 8 pm - she says they seem to hit worst about 1-2 hours after taking the meds.
Rich
__________________
Husband to Jill
Diagnosed 10/05, age 39
R Mast 11/05
Stage II N0
Her2+ er/pr+
Revision Mast due to positive margins 12/05
TCH Chemo started 1/06
Finished TC 4/06
Tamoxifen
Finished H 12/29/06
Currently NED
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12-20-2006, 02:40 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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We are all SOOOO different!!!!
I find that if I take my Tamox in the AM -I do much better than if I take at night. I also take Effexor with my tamox. Generally, Effexor is given for depression, but behold! it also is given for hot flashes. I take 1/2 dose (37.5 mg)... I did find that when I took the generic Effexor, it was not as effective.
Now I rarley get hot flashes and I feel that 1/2 dose of Effexor is enough for the hot flashes and also not too much to make me lose "libido".
I hate taking extra meds... but the hot flashes were horrendous. I would be in the middle of a meeting and start sweating drops off my forehead... It would trickle down my back into my pants ... not a pretty sight. The sweating made me self conscious and then embarassement would kick in and make it worse.
Anyway, the Effexor is amazing. Only thing is that if you miss a day or two, the withdrawals are not good. Dizzy. My body always knows when I have not taken it because I begin to feel the flashes right away.
Maria (MTS)
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12-20-2006, 07:16 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Colorado
Posts: 76
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Hi,
I have been on Tamoxifen for a year now and although hot flashes and night sweats are not as frequent as a year ago, I am still experiencing several/night. My oncologist suggested numerous meds and vitamin E. I decided to try the vitamin E first. She suggested I start with 400 IU/day. I have only been taking E for a couple of weeks, but may have already seen a slight improvement.
Karen
__________________
Karen Raines Hunt
Dx April 2005 at age 46
stage 3A, very large (12cm) tumor
2 positive axillary lymph nodes
ER+/PR+, Her 2 +++
Bilateral mastectomy, radiation, reconstruction, A/C, Taxol, Herceptin, Tamoxifen, Aromasin
5 yrs since diagnosis and NED
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12-20-2006, 10:02 PM
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#6
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi Susan,
After 9 mos, I still have hot flashes with tamox. I still haven't found the right time to take it. For me , the flashes occur randomly,almost daily, regardless of when I take it. Someone on this board at some point had said the flashes are telling you it's working.
My hardest flashes were doing AC, before Tamox. Keep in touch and let us know if you find something that works. BB
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