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Old 11-28-2006, 09:26 PM   #1
Heart Sutra
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Kidney Donors and herceptin, chemo?

Thank you for being here.

Sue is a kidney donor. We are wondering if there are any others here and what their experiences with medication post-op was.

We need to research whether or not herceptin is given to donors, and if being a donor alters treatment. If you know, it would be a great help if you let us know.

Sue is scheduled for a mastectomy with node biopsy on Dec. 5th. Reconstruction same day.


---Kevin and Sue---
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Old 11-29-2006, 02:38 AM   #2
saleboat
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Hi Kevin and Sue,

I have a close friend who is Stage IV, Her2+. She has been on AC/Taxol and Herceptin, and now Naveline (I'm spelling this wrong) and Herceptin. I don't think the fact that she donated a kidney has changed her treatment plan at all.

Hope this helps.

Jen
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dx 4/05 @ 34 y.o.
Stage IIIC, ER+ (90%)/PR+ (95%)/HER2+ (IHC 3+)
lumpectomy-- 2.5 cm 15+/37 nodes
(IVF in between surgery and chemo)
tx dd A/C, followed by dd Taxol & Herceptin
30 rads (or was it 35?)
Finished Herceptin on 7/24/06
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Old 11-29-2006, 06:53 AM   #3
tousled1
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Kevin,

All I can tell you is that once you have a diagnosis of cancer you can not longer be an organ donor. The only thing after diagnosis that you can donate is your eyes. I'm assuming that Sue received a kidney and in that case I'm not sure what the protocol would be.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 11-29-2006, 03:09 PM   #4
Heart Sutra
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hi again

What I meant is that Sue donated a kidney 15 years ago. So, she's one short. and I wondered if that was going to change her treatment.

Thanks for the information, it all helps.
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