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08-31-2006, 04:18 PM
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#1
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Scans came back clean!!
Got my PET/CT scan results back today and they are clean again..whew! No mets anywhere, I am so relieved. I get scaned every 3 months to keep an eye on those lung mets that I had. My Oncologist did tell me that he may be switching me from Herceptin to Tykerb when it comes out. The Herceptin is keeping me with sinus headaches but it's working... I'm going to try to get on both for extra insurance. I sometimes feel like I am living 3 months by 3 months...he said if I wanted we could extend the scans to 4 months but I told him, I would probably freak out over something before then and want to be scanned anyway. So I'm good to go until December 1, which happens to be the day that I was diagnosed...my 1 year anniversary. I don't think I will do the scans on that day, it's not a lucky day for me...sherryg683
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08-31-2006, 04:27 PM
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#2
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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congrats on the clean scans. i think we all feel we are living day to day with this her2+ cancer, however, there are so many encouraging stories and so much encouraging promise for treatments. continued good scan results.
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~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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08-31-2006, 04:39 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Yay Sherri!! Such good news!! I think you have a trend going and I say keep it up!! What a relief for you!
Hugs,
Lexi
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08-31-2006, 05:17 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Sherri, So glad that your scan came back clean. It's always nice to hear good news. I know how you feel about getting the scans every 3 months - I do too.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-31-2006, 05:20 PM
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#5
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Senior Member
Join Date: Sep 2005
Posts: 556
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congrats sherrie
Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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08-31-2006, 05:33 PM
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#6
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Senior Member
Join Date: Oct 2005
Posts: 476
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Congrat on your clean scan.
By the way, I had my bone scan today. If they only ran through the scan once, does that indicate there is nothing that they should re-scan for certainty. Then the possible result will be negative met. Is that a reasonable interpretation? I am crossing my fingers hoping this is the case. Actual results wouldn't be known for four more days.
Ann
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08-31-2006, 07:58 PM
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#7
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Great news!!
Karen
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08-31-2006, 08:31 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Great news - especially with all the difficulty you have been having with the sinus headaches. I know what you mean about living in 3 month increments - mine are 4 and when I get clean scans I feel like I have gotten a license to breathe - literally! I hope you plan to celebrate!
Congratulations, I'm so happy for you!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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09-01-2006, 11:09 AM
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#9
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Great news and the perfect posting to read before I shut down my computer for the long weekend. I hope that you have a great weekend and send you my best wishes and prayers.
Carolyn
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09-01-2006, 11:55 PM
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#10
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Hi Sherryg, I just wanted to say, Big Congratulations on the CLEAN scans. YEAH. Sorry to hear about the herceptin headaches...I get those too.
Now that you got your good news...go out and have some FUN girl. 
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-02-2006, 11:05 AM
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#11
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Super news!! Sherry -
I sure remember what it was to live from one scan period to the next when my liver mets finally got under control.
Now I am doing that again with my brain situation - only the time periods between the MRIs is shorter. But the feeling of relief is the same, when the rad onc says that there is no new activity, stable, no treatment needed, etc.
Sorry the Herceptin is causing the sinus upset, as the drug seems to be doing a good job against your disease.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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