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Old 07-13-2006, 12:32 PM   #1
Lee
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Good CT and MUGA results today!

I have been off chemo and on every-three-week herceptin since April; I was pronounced NED at that time. So this was my first follow-up CT since chemo was over. Good news to report - I'm still NED! I apparently was nervous about this appointment, because my blood pressure was sky high (it's usually at the low end of normal) but I'm breathing a HUGE sigh of relief. This leads me to believe the herceptin is doing what it is supposed to.

I also had a good MUGA report, my LEF was 72%. The weird thing is, it measured 70% in December, and then when we re-tested in May, it was at 54%. Since it had gone down, we decided to re-do it again this month, and it's back up in the 70s. Doesn't this sound like the middle reading had to be a mistake? Whatever the reason, I'll take the good number if it means I can stay on herceptin!

My hubby and I are leaving for vacation in Italy on Saturday, so this was a GREAT thing to take with us!


Diagnosed 9/05, ER/PR-, Her2+++
Lumpectomy 10/05
Found mets in liver & pelvis
Began Taxol/Carbo/Herceptin 10/31/05
Finished chemo 4/06/06, now on herceptin every 3 wks
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Old 07-13-2006, 01:17 PM   #2
Joe
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Lee,
That is certainly great news !!! We always suggest repeating a test when results are abnormal. I'm glad you did and I'm glad the results were good.

Regards and enjoy your trip to Italy,

Joe
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Old 07-13-2006, 04:55 PM   #3
tousled1
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Great news Lee. Now you and your husband can relax and enjoy your well deserved vacation.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 07-13-2006, 09:43 PM   #4
chrisy
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Great news, Lee - take that sigh of relief on vacation with you and enjoy the break! You certainly deserve it!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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