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04-27-2006, 10:59 AM
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#1
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Report from TriciaK
Hi everyone: I told you I would report on the heart tests I went through at the hospital last week with my new heart doctor. He did an angiogram and an induced stress test. They showed a significant lesion, and so he wants to do another angiogram and put in a stent. At least he doesn't think at this time that he needs to do the angioplasty, but he has put me on a heart monitor. The most revolting development for me is that my oxygen saturation level is down to 85% so I am having to be on oxygen even at this altitude of almost sea level! That is frustrating to me because my goal has been to get my oxygen saturation up to the point where I can go without an oxygen tank to visit kids and grandkids in the mountains, over 6000 feet, where I used to live. I am going to try some things, like extra vitamins and minerals and veggies, omega balances and so on. We have been planning to leave tomorrow to drive our little RV back to S. Carolina to see two granddaughters graduate from college. We had planned to be gone about three weeks but the cardiologist would like to do the stent sooner, so guess we have some decisions to make. At least it is all hopeful, and this doctor wants to do something. I told you about the other cardiologist who has done nothing for 2 years---he was expecting me to die from cancer anyway, I think! So there you have it. If you don't hear from me for a while you will know why! Hugs, Tricia
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04-27-2006, 11:16 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
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Tricia;
I am so glad this fellow is going to take action. Perhaps you know of this site but if you go to the Resources area on this site there is a link to a heart site with lots of recommendations for supplements, etc. It might interest you. Take care.
Cathy
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04-27-2006, 06:19 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Thank you for this info, Cathy. It is really great, and I had not known of it before. There is so much information there for all of us, and I really appreciate your calling it to my attention! Hugs, Tricia
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04-27-2006, 07:06 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Tricia,
You certainly have a lot of planning and decisions ahead of you. On the other hand, it is promising to have a doctor who sees a future for you. My thoughts are with you and I hope that all will end up well and you will soon be with your grandchildren.
Best wishes,
Barbara H.
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04-29-2006, 05:10 AM
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#5
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tricia
It seems like good news that the stent will work, and not nearly as invasive as the surgery could be....I wish the timing was better for you as far as your visit to see grandchildren goes...i know how precious our time is with them! Rest while you travel so you will be strong when the procedure is done and can get back to easy living soon....my thoughts and prayers are with you Tricia!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-01-2006, 06:51 AM
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#6
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Tricia...
my prayers will be with you...on your decisions AND your travel plans. Take care and God bless.
Rhonda
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05-01-2006, 09:10 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Los Angeles
Posts: 430
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Tricia,
It's a step by step. At least this guy is willing to work with you. I hope it continues to be ok for you.
And contratulations on the graduations
XO
MCS ( maria)
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