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Old 02-01-2010, 01:01 PM   #1
StephN
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Wink SHingles vaccine - anyone get it?

Hi -

Had my annual physical last Thursday and all was well. Since I had both the flu shots and am current on my Tetanus, my doctor wanted me to have the Zoster shingles vaccine. I caved and agreed.

He is seeing more people in their 50's and 60's coming in with the shingles. Guess it is another aspect of the "baby boomer" effect. Since most of us had Chicken Pox.

Plus he said that if I have to go back on treatment some time and the shingles show up, I would be utterly miserable. The vaccine is not a 100% guarantee not to ever get the shingles, but cuts it by something like 80%.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 02-01-2010 at 01:25 PM.. Reason: Meant to say "Shingles" not "singles." Oops.
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Old 02-01-2010, 01:17 PM   #2
Gerri
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Re: Singles vaccine - anyone get it?

Oh, you meant SHINGLES ....for a minute I thought all I needed was a vaccine to be single again.....how easy is that?? Just for the record, I would have stayed married...

I had shingles last year and fortunately knew exactly what was going on and hurried over to my doctor who gave me a prescription for Valtrex -- worked like a charm. My pain was almost gone in less than two days and I had no more outbreaks - most people are not that lucky. Unless the side effects are dramatic I would be all for getting the vaccine. Even though mine was short-lived, it was not fun!

Happy to see you doing so well!
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
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Old 02-01-2010, 01:24 PM   #3
StephN
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Exclamation Re: Singles vaccine - anyone get it?

Oh, GOSH, Geri! I will fix that heading ... my phone keeps ringing as I am on the site today.

Singles - shmingles.

Smart cookie, Geri - glad you caught the earliest symptoms. We probably should all be aware of them. Save ourselves some grief.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 02-01-2010 at 01:31 PM..
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Old 02-01-2010, 03:42 PM   #4
v-ness
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Re: SHingles vaccine - anyone get it?

i've been getting a little patch of shingles on my right boob for about the last 4-5 years. every year, once a year, exact same spot. only about the size of the pad of my forefinger. it came back around christmas and i never bothered mentioning it to my oncologist at the time. jeeze, when i mentioned it 2 weeks ago you'd think from her reaction that i'd forgotten to tell her i had the plague! oopsie.

i have told her for 3 weeks running that i've had a bloody nose. every time i blow my nose the result is a red rorshach test and i did everything you ladies suggested and even keep a humidifier on all night. nothing has helped. so today finally my bloodwork came back with something amiss in my "clotting factor" and they took 7 (!) vials of blood out of me to test. great, i am going to a little backasswards town in utah for a week on wednesday and i got this to worry about? not sure what it could be all about but it would sure be nice to SOMEDAY have a blood-free, pain-free nose. well, maybe i will google "clotting factor" and scare the crap out of myself just for fun now.

valerie
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 02-01-2010, 11:58 PM   #5
Jackie07
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Re: SHingles vaccine - anyone get it?

Thanks, Steph. (Gerri, you are so funny...)

I think I will ask my doctors about it next time I see them (by that time I should be over 50 . I got chicken pox here in the States when I was 25 after I had been babysitting a neighbor's kid who's having chicken pox. My Mother couldn't remember if I'd had chicken pox when I was little (she's got too many children and I'd had too many illnesses.) We presumed that I must have had one. But then after the babysitting episode, I ended up having chicken pox. Didn't know what it was until one of my classmates - a lady in her late forties - pointed out that I had chicken pox. Went to the school nurse and was told to stay off campus for a couple of weeks.

Valerie, I hope your nose gets better soon. Be sure to be hydrated.
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Last edited by Jackie07; 02-04-2010 at 09:06 PM..
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Old 02-01-2010, 11:58 PM   #6
Chelee
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Re: SHingles vaccine - anyone get it?

Steph, Thanks for a good laugh tonight. I was lol when I read that your phone keeps ringing tonight. Ha! Too funny girl.

At least we KNOW what your mind is "really" on these days after a "title" like that. lol

Since I'm here...I have not had the Shingles, nor the singles vaccine. lol Not one of my doctors has ever brought it up to me. Not sure if I want one or not? But if I end of with a good case of shingles I'm sure I will be thinking much differently! I sure hear about an awful lot of people that get shingles and their just misrable...so you it's probably a smart move. (Last thing...did your phone ever quit ringing?)

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 02-02-2010, 08:41 PM   #7
Barbara2
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Re: SHingles vaccine - anyone get it?

I am glad to know this, as I thought anyone with cancer should not get the vaccine, but I see from the information below, that if your immune system is not weakened you can receive the shot. I briefly discussed cancer/immune system with my onc the last time I saw him, and he said that in time, the immune system returns to normal...good to know.

From WebMD:

Who should not get the shingles vaccine?

According to the CDC, don't get a shingles vaccine if you've have the following:
  • A life-threatening allergic reaction to gelatin, the antibiotic neomycin, or any other component of the shingles vaccine. Tell your doctor if you have any severe allergies.
  • A weakened immune system because of:
  • HIV/AIDS or another disease that affects the immune system
  • Treatment with drugs that affect the immune system, such as steroids
  • Cancer treatment such as radiation or chemotherapy
  • A history of cancer affecting the bone marrow or lymphatic system, such as leukemia or lymphoma
  • Active, untreated tuberculosis
  • Pregnancy (or might be pregnant). Women should not become pregnant until at least three months after getting shingles vaccine.
  • WebMD Medical Reference




    Reviewed by Brunilda Nazario, MD on April 22, 2008
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DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
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Old 02-03-2010, 09:11 AM   #8
suzan w
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Re: SHingles vaccine - anyone get it?

Hi Steph, I had the shingles vaccine, and the pneumonia vaccine about a year and a half ago. I am prone to cold sores(another herpes virus), caused by stress, too much sun, and sometimes just because! I know far too many people who have suffered with shingles so thought the vaccine well worth it.
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 02-04-2010, 05:16 AM   #9
LoriE
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Re: SHingles vaccine - anyone get it?

I wth was given the vaccine for whooping cough. My doc said that "at my age" my old vaccine I got when I was a kid has worn off. Evidently, there's a new outbreak of whooping cough. But a shingles vaccine? She never mentioned that one.
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Old 02-04-2010, 12:35 PM   #10
StephN
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Wink Re: SHingles vaccine - anyone get it?

Hi -
When I got the shingles shot I barely felt it. It is given in the back of your upper arm just under the skin.

I have had a small local reaction - a reddish patch about 2" by 1", which itched slightly the second day, but OK now and fading. My doctor's nurse said this is not very unusual.

Heard that there were some cases of Whooping Cough, but no mention to me to get a shot for it.

My teen aged grandsons were over for dinner last night and talking about epidemics. (Brought up by the absence of the H1N1 flu these days.) Since they got a chickenpox vaccine, they are not in danger of getting the shingles. However, one of them piped up saying he was not sure how long his immunity for chickenpox would last and hoped there would not be an outbreak!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-04-2010, 06:00 PM   #11
Patb
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Re: SHingles vaccine - anyone get it?

My Doctor recommended the vaccine and I had it
last summer. All is well. He said it was a very safe
vaccine and he had taken it.
patb
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07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
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Old 02-04-2010, 07:58 PM   #12
Joe
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Re: SHingles vaccine - anyone get it?

I had shingles in 2003 and wouldn't wish it on anyone. It took over a year to get rid of it.

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Old 02-05-2010, 01:36 PM   #13
Nancy L
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Re: SHingles vaccine - anyone get it?

My mother never got rid of the shingles and this happens to many elderly. She suffered with so much pain.

I am the first in line for any vaccine that will prevent a problem. I think I was the first one in Reno to get a shot but now it is very routine. My husband got his recently at a pharmacy in our neighborhood. Don't hesitate a minute to get this protection. Shingles are awful.

I will fly anywhere to get the first demonstrated breast cancer vaccine. Lots of work in this area but lots of skeptics. None of the oncologists I have seen believe it will happen.
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Old 02-05-2010, 10:40 PM   #14
Catherine
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Re: SHingles vaccine - anyone get it?

I saw my GP today, about a small issue. She went over all my details, vaccines, etc. So she treated my small problem, talked me into updating my Tetanus shot and called my oncologist to see if he, too. would recommend the Shingles shot. Onclogist nurse called back and said yes, get the Shingles shot. Earlier I had also read the warning on WEBMD not to get the Shingles shot if you had a suppressed immune system. So dumb question, 3 years plus after chemo....do I no longer have a suppressed immune system?

Thanks for your reponse,
Catherine
(Thank goodness I do not need the Singles Shot)
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
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Old 02-06-2010, 01:33 AM   #15
Chelee
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Re: SHingles vaccine - anyone get it?

As Suzan said...I have known far too many people over time that have had shingles. I had a neighbor that had it for over nine months. He said it was so painful...he was just misrable. I think it would be well worth the vaccine to avoid being in misery. I am surprised not one of my doctors has asked me if I had it?

Sounds like you have a good doctor Steph that cares about his patients as it should be.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 02-11-2010, 07:48 PM   #16
karen z
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Re: SHingles vaccine - anyone get it?

Hi Steph,
My internist routinely gives the shingles vaccine to patients who are 60 years old. Unfortunately that is two years away for me and I have come down with a case of the shingles- diagnosed today. So far, having shingles is not much fun- very itchy and kind of painful.
Karen
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Old 02-11-2010, 10:02 PM   #17
Chelee
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Re: SHingles vaccine - anyone get it?

It just so happens when I had chemo last Monday I picked up a Readers Digest sitting there. One article was titled, "Is Your Doctor Out of Date?" One of the things it covered was immunizations...or lack there of. It mentioned how doctors aren't good at keeping kids up-to-date. But then it also mentioned that physicians are even "worse" at making sure adults are on track with vaccinations. It said only half of adults are up-to-date on the tetanus boosters which your suppose to have once every decade.

Then it went on to say far fewer get the shingles vaccine--only 6 percent of adults 60 and up (the recommended age group). It said "Yet shingles can affect anyone who has ever had chicken pox and can be agonizing." It went on to stress the importance of asking your physician to check your immunization history against the guidelines. (It said other shots you may need--including flu, hepatitis, shingles, HPV, pneumonia depending on age, gender, health history & occupation.)

So it looks like Steph is one of the lucky ones that has a doctor that is UP-to-date instead of out-of-date.

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 02-11-2010, 10:17 PM   #18
StephN
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Location: Misty woods of WA State
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Re: SHingles vaccine - anyone get it?

Thanks Chelee. I have been going to this general doctor since 1983, and would have changed if I had ANY doubts! He is just a couple years older than I am, if THAT tells you anything...

Catherine - our immune systems do eventually recover from the chemo and radiation blasts. As long as your red, white counts and other blood work is in normal range you could get the shot.

Sorry that KarenZ has to endure the darn disease and her body would not hold off till after she can get the vaccine. It is just as my doc said - this is the age group he is seeing come in and getting diagnosed with shingles
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"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-12-2010, 07:05 PM   #19
karen z
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Re: SHingles vaccine - anyone get it?

update on shingles: STILL NOT FUN AT ALL!!
The only time I feel o.k. is when I am sleeping!!
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Old 02-12-2010, 07:13 PM   #20
Gerri
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Re: SHingles vaccine - anyone get it?

Hi Karen,

So sorry to hear that you are suffering from shingles. Did you get an Rx for anything? I started on Valtrex the first day and managed to keep the symptoms under control. If you are still within the first few days of the outbreak it may not be too late - you can at least lessen the severity.

Hope you start feeling better soon.
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault
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