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10-06-2010, 04:40 AM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Thinking of you Tricia
Thinking of you Tricia.....praying your treatment went well the other day and that you are feeling ok today! You are such a LOVELY lady.
Praying peace and love surround you today dear friend.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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10-06-2010, 06:25 AM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Thinking of you Tricia
Adding my own good wishes Tricia and echo Mary Jo's comments and hope you're doing okay after your treatment.
(((((hugs))))
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-07-2010, 12:57 PM
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#3
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Thinking of you Tricia
Thinking of you Tricia.
Amelia
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10-07-2010, 02:06 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: Thinking of you Tricia
sending good thoughts your way! xo
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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10-07-2010, 07:08 PM
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#5
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Thinking of you Tricia
And more............
karen
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10-08-2010, 10:02 AM
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#6
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Thinking of you Tricia
I have my fingers crossed for you Tricia. Take care.
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10-08-2010, 01:04 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: Thinking of you Tricia
Thank you all so much for your kind thoughts and words! I am not doing too badly, still hanging in and positive. I haven't had navelbine, just herceptin, for two weeks so have actually had more energy, plus am also now on prednisone. (You know what steroids do for wrestlers and athletes!) My white cells are coming back up so my oncologist will probably add navelbine again next week. He insists I need it for the lung mets, but is adjusting the dosage and schedule. I am still having strange side effects from the navelbine, where I had none 5 years ago. I was not too surprised at nausea and vomitting from it, but the strangest has been severe earache and pain, and lots of ringing and strange inner ear sounds. My home health nurse checked and suggested I see an ear specialist right away so I did today. His exam showed that my ears are full of fluid and I need tubes put in to drain them! I think the side effects are annoying me more than the BC! I still feel encouraged because the ca 27/29 marker dropped from 131 in July to 60 in September. The next few months will show if the markers continue to drop and also if I can keep my ejection fraction above 50 so I can continue the herceptin as long as possible.I see the oncologist every week on Tuesday after blood tests on Monday and will see what he suggests about the tubes. I am also looking forward to meeting next week with a guided imagery specialist from home health--As many of you know hypnosis and guided imagery was a specialty of mine in my psychological practice. I saw some amazing results in others, and was able to do self hypnosis in the past, but it is harder now to do self hypnosis and I am looking forward to working with someone. I firmly believe hypnosis and guided imagery has made a big difference in my 25 year old fight with BC. I'll keep in touch---the love and understanding on this site means so much! Hugs, Tricia
Last edited by TriciaK; 10-08-2010 at 01:11 PM..
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10-08-2010, 01:51 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Thinking of you Tricia
Tricia,
It's so nice to hear from you. Glad you are doing well all things considered. Seems like you and me are the only two that have these strange side affects with the pounding in ears...and severe ear pain on Navy Beans. (I also had jaw pain right in front of each ear lobe...it hurt!) After reading your post I think I might go see a ENT and have my ears checked out. Like you...the side affects from Navelbine bothered/worried me more then the darned recurrence.
Sorry to hear about your nausea. Sometimes it helps to have about six small meals throughout your day...try not to let you stomach get empty. (Easier said then done...I know.) But it really does help. That is a nice drop in your CA27.29...wonderful news...at least you know it's working. You have a long history of kicking cancers behind...and you "will" do it again! Your such an amazing and inspriation to me. I will continue to keep you in my thoughts and prayers that you can remain on Herceptin...and that all of this will soon be in your rear view mirror. Hang in there Tricia.
Sending you lots of positive energy and love.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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10-09-2010, 11:51 AM
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#9
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: Thinking of you Tricia
Love and energy to you Tricia.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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10-09-2010, 08:18 PM
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#10
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Thinking of you Tricia
Thanks for the tips about hypnosis and self-guided image. Guess I'll give it a try. 
Take care.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 10-09-2010 at 08:34 PM..
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10-09-2010, 08:45 PM
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#11
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: Thinking of you Tricia
Good luck Tricia- sending you positive vibes and wishes from Canada!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-09-2010, 09:00 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Thinking of you Tricia
Keeping you in my thoughts and prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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10-10-2010, 09:14 AM
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#13
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: Thinking of you Tricia
Tricia, every time you post you put a smile on my face. My mother-in-law has congestive heart failure, will be 86 in January, and two weeks ago flew by herself to Germany to visit a friend and relatives. She is currently touring Switzerland with a friend. You provide a lot of positive energy to us, and thank you for writing when you can. I hope for the best for you, and that you will soon be back in remission.
Kind regards,
Barbara
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