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01-19-2008, 06:36 PM
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#1
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Missed everyone
Hi all
On January 7th, my computer went down. I had to order and receive and
install a new one. All this time I missed this site and all you so much, and
I was seriously having withdrawal. I would think how is this one, then another, all the time. Now I have a new computer and have read all posts since the 7th of January. I told everyone of my new addiction. Thanks for all the information and support and I'm glad to be back.
patb
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patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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01-19-2008, 06:54 PM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Patb, glad you're back! It's really comforting to know we have this place, and when I've had computer troubles I go through the same thing; I've even went to my husband's office to get caught up once when our home computer was down for a week 
<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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01-19-2008, 07:26 PM
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#3
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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And we are so glad to have you back!!!!!!!!!!!!!! Yes, you are right, when our computers act up and we cannot use them it is really the worst feeling. You feel lost. Disconnected from the world somewhat. With having the world at our fingertips, literally, our lives have changed so much. So much knowledge at our disposal - cyber relationships formed - it all becomes quite addictive. I would agree.
This site is a place I check into daily. Many times a day for that matter. I care about each of you tremendously. I want to know how you are all doing. I use that "check in time" to pray for you all and to offer specific prayers for those who need it. Also I crave the knowledge that is here at our disposal.
We are blessed that people like Joe and Christine have created this site for each of us, aren't we?
Again, welcome back Pat. You were missed as well.
Love & God's Blessings,
Mary Jo
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"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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01-19-2008, 09:10 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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PatB,
I felt the same way recently when our computer went down for a week. Glad to have you back!
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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01-19-2008, 10:59 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Welcome back Pat!
When we can't get on the boards, I think we really realize how much support we receive here. We feel lost without everyone! I know I have to check in before going to bed everyday or I can't go to sleep. Its comforting to just touch base, even if we don't post often.
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Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-19-2008, 11:15 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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hey Pat !!! I'm 40 year old ...but about being in love with this site I'm a real teenager ...can't wait to check morning and evening before the bedtime ...and some times 3 or 4 times it is my emotional therapy ...depend of this site is how I get out of the room .....with a smile or sad face depend which news I'm read it !!! this side is more then a family for me ...because no with all my family I have this type of communications ...daily .and sometimes I'm thinking how bless I'm knowing a little bit of English so I can understand what is this site about it ....
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Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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01-20-2008, 11:23 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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We're so glad you are back, Pat! I think we all feel the deep connection of this site. I check in at least once a day and post as often as I can. It is wonderful to know it is here for us no matter what the question or need.
And, Lily, I love your posts and I am so glad you are able to post, too. It may be that it helps your English proficiency a little, but we love you just as you are because your sweet spirit shows through in everything you write! Hugs, Tricia
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