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11-16-2006, 03:39 PM
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#1
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Member
Join Date: Nov 2006
Location: Texas
Posts: 6
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Herceptin without Chemo
Stage 1 cancer. After a lumpectomy and radiation I had one chemo treatment which my body would not tolerate so went from there to Herceptin and Arimidex. Does anyone have any experience with Herceptin without Chemo?
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11-16-2006, 05:14 PM
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#2
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Hi, and welcome 
You might try a search for posts by Tom, who frequents this site. Look for "Mom's PET/CT results and a ?".
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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11-16-2006, 05:35 PM
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#3
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Member
Join Date: Nov 2006
Location: Texas
Posts: 6
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Thanks Lolly, I will do that when I figure out how!
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11-16-2006, 05:41 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Just click on the search facility above third from right!
Tricia
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11-16-2006, 05:54 PM
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#5
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Member
Join Date: Nov 2006
Location: Texas
Posts: 6
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Thanks. I got it and it is comforting.
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11-16-2006, 05:55 PM
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#6
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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EFD, I am stage 1, ER+/PR+ and had lumpectomy, radiation (with Herceptin) and now Femara and Herceptin, no chemo. Will stay on Herceptin for one full year, every three weeks.
Hopeful
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11-17-2006, 04:59 AM
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#7
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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EFD
I was Stage 1, Her2 +++, ER PR - with zero positive nodes 7mm tumor IDC.. Mastectomy, not chemo, then a recurrence 1 1/2 years later to the neck nodes. I have been on Herceptin ever since and Xeloda was added 6 months ago.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-17-2006, 08:33 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 115
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I was stag 1 no nodes and no vascular invasion. I did herceptain for 1 year no chemo - i as assured by three separate oncs that herceptain works without chemo and in the not to far distant future this wll be the standard treatment. I am slo taking lupron shots and arimidex.
Susanne
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11-17-2006, 08:46 PM
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#9
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Member
Join Date: Nov 2006
Location: Texas
Posts: 6
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Thanks Susanne, I was told by a doctor in Houston not to take Chemo only Herceptin and Arimadex but my doctor here told me I needed chemo first as he had no protocol for taking herceptin alone. I took one chemo round and he said I could not take anymore so am taking only Herceptin. I have been reading a lot about Herceptin and I, too, have read that may be the treatment of the future but had not heard of anyone who only took Herceptin. So glad to hear from the ones who only took Herceptin as it has been a big concern for me. I have not heard about lupron shots but will research it tonight. I loved hearing that your doctors recommended only the Herceptin.
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11-18-2006, 05:21 AM
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#10
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Senior Member
Join Date: Aug 2006
Posts: 79
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I recurred to the bones and lungs almost 4 years ago--I had
radiation to the bones--Herceptin, Aridia and various estrogen blockers since that time. No chemo for the recurrance as yet and fairly well maintained.
Kathy T
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11-18-2006, 07:35 AM
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#11
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Member
Join Date: Nov 2006
Location: Texas
Posts: 6
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Sounds like it is working. Will pray it all keeps going well.
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