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Old 04-04-2005, 07:41 PM   #1
lindaw
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Dear All
Anyone know anything about ovarian mets. As previously written my ct scan was clear except for ovarian follicles ( bi-laterally/2 cm). Given my history I suspect the worse and would like them removed whilst small. Is it more prevalent mets site with her2?Anyone with any advice would be helpful
Thanks
linda
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Old 04-04-2005, 07:57 PM   #2
al from canada
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Hi Linda,
DON'T panic! I know that we always assume the worst but... are you having more scans, tests etc to get a definitive diagnosis on the follicles? From reading this Board for the last 1 1/2 years, I don't remember ovarian mets.
Let's get some results and stay strong.
Take care,
Al
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Old 04-05-2005, 02:58 PM   #3
lindaw
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Dear Al
Thanks for your comment I was thinking this also - never heard anyone mention it on the board. Its just the worst case scenario in me coming out as everything for me which could be nothing always seems to be something. I am feeling better after your comment and my surgeon said 'oh its just normal stuff' . The sus person in me is having an ultrasound with a gyn/ob specialist who just does ultrasound - on Friday. But secretly I am more confident and I thank you for helping me get there.
love
kinda
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Old 04-05-2005, 05:42 PM   #4
*_joy_*
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Linda, i know the panic, i had the same situation and it just turned out that I was such a woman despite being induced into menopause. i was having normal (well-normal for a healthy pre-menopausal gal anyway)follicular activity. Ovarian function, etc. is triggered, largely, by pituitary-originated hormones and subject to many influences. Often times women who have even had total hysterectomies in ther pre-meno years will, in their 50's or so, start have menopausal symptoms. this is because our pituitary is 'programmed' to function in a certain capacity until middle age, regardless of the affected parts-it's amazing really.

Anyway, I work with many breast cancer clients and i can think of no one with ovarian mets. Let us know.
love, joy
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Old 04-05-2005, 11:05 PM   #5
lindaw
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Dear Joy
Thank you so much for your reply. It makes me feel better.
love
lindaw
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Old 04-06-2005, 04:36 PM   #6
susie
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Hi there,
Ovarian mets are rare, but can occur in women that have the bc "gene" and also I have heard of them with lobular bc. But they are very rare! I had my ovaries removed recently because at age 52, they were still producing. Let us know how everything goes for you. What a wonderful group we have here.
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Old 04-07-2005, 04:01 PM   #7
lindaw
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Dear Susie
Thanks for your info. It is a great forum isn't it. I always think the course of my cancer would have been so much different without the info , advice and support from here.
love
linda
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Old 04-07-2005, 06:11 PM   #8
Gloria
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I had all kinds of gyn problems - thickened uterine lining probably due to the Tamoxifen; enlarged uterus for unknown reason; multiple large ovarian cysts - have always had ovarian cysts but because I was in some sort of chemopause, the drs were concerned because someone who isn't ovulating shouldn't be having these cysts, or so they thought!! I had no symptoms whatsoever - no pain, no periods so no heavy bleeding. Had numerous ultrasounds, 2 uterine biopsies; D&C; hysteroscopy - nothing conclusive other than a uterine polyp found during the D&C. At last ultrasound, one cyst was very large - greater than 5 cm so the docs said it was time to be more aggressive - had a bunch of labs for possible upcoming surgery including a CA-125 which indicated possible ovarian cancer - well that was elevated - UGH - so, of course, we think the worse. I had a dying father at the time and absolutely did NOT want surgery but everyone talked me into it because if it was something, hopefully, it would be an early uterine and/or ovarian cancer. Had hysterectomy and bilateral oophorectomy on 8/24/04 - and guess what - ALL BENIGN - not a trace of precancer, cancer, nothing - praise the Lord. I know it's easy for me to say not to worry but please don't until something is definitive. One suggestion, if surgery is recommended, please have a gynecologic -oncologic surgeon do it - this is vital; I love my gyn and he was in the OR for my procedure but left it all up to my equally fabulous gyn-onc surgeon.
God bless.
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