here is a link to a researcher (I heard her speak --as I recall she is a PhD epidemiologist type, rather than an oncologist, surgeon or other MD)
She herself is a bc survivor with lymphedema and has started a clinical trial and in all likelihood knows about more clinical trials (perhaps new ones starting)
And, she is in OHIO!
http://www.jamesline.com/research/pr...ID=2119&CID=73
PS. Have you tried gentle exercises in a swimming pool (indoor, of course, in Ohio in winter)?
Hope this helps!