Posted yesterday in wrong place, so...

[Lisa]

Another down day
Starting tomorrow I'm into week 3 of Xeloda (3000mg/day)for 2 weeks, then 1 week off. I'll skip the part about insurance not understanding that I must have it on that schedule and not allowing a refill without a fight today. And I'll skip the part about my generic morphine not being availble today at my pharmacist's. And I'll skip the part where three radiation oncologists told me this past week that 1) I have no fracture in my left rib where there's pain / #2 told me I have an acute/subacute fracture of my left anterior 9th rib/#3 told me I have a "healing" fracture. All while I know from my PT/CT scan that there are DEFINITELY lesions on my spine that do have me concerned.
But, from the PA today:
......"Is it (rib) feeling better? yes
.....'Are you taking the Dexadron we prescribed? not really
......"Did you fall? no
'''''''''"Have you had a coughing fit? no
......."Did you hit something? Other than the bottom of an upswing in mood, no.

My tumor markers have continued to increase during these first 2 weeks of Xeloda: 1/19 CEA 48.6 & CA 27/29 183
1/26 CEA 37 & CA 164
12/08 CEA 23.4 & CA 124
So I'll skip all that and just say that I could do a "pain of hemmoroids" commercial with little acting skills.

Well, got that off my chest.

Love and light,

Lisa

[al from Canada]

Lisa, hang tight, xeloda takes time to work.
Wishing you all the best,
Al

[StephN]

Yes, I did miss your post!
Sorry to hear that - NOT what you needed.
Sure hope the Xeloda will have the desired effect for you.
Some days it feels like nothing will go RIGHT - and we are just beating our head against a brick wall of non-cooperation and misunderstanding.

But your day was a little over the top - wonder you did not land in jail for assault before it was over ...

I had a little of that same frustration yesterday when I called the PET scan office to see about my brain PET schedule. The gal there could not find the requesition for my test. She was going to have to track down my nero onc and this is never easy. I know he did not forget - but there is a crack in the system someplace. So I may be shoved back a week on this ... gr-r-r-r-r-r-