Re: Tumor marker tests - what do they mean?
Hello, AlaskaAngel,
I suppose that is why many doctors don't use tumour markers - because they are not reliable. However I consider them worthy because they show a trend, whether up or down. I am lucky to be able to have whatever tests I need (free) here in Canada and I get them when I need them. Being new to the game however, I am not sure WHAT tests are routinely performed...so when people say they are NED, what tests have they had to confirm that? Here in Canada doctors don't like to do unnecessary MRI's or CT scans. There are many published reports on the dangers of the radioactive dyes used in CT scans/PET scans and I sure don't want them done routinely.
Other than bloodwork and tumour marker tests, are there other tests to confirm NED? I suppose I could ask my doctor these questions but I find my her2 sisters seem to have the information I need.
Dianne
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Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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