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Old 09-27-2007, 06:49 AM   #1
Christine MH-UK
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In EU? Read Lani's thread 'I could editorialize...' then get writing

If you read Lani's thread, you will see that DG Employment of the European Commission have come up with a Directive that may make it impossible to get an MRI scan in the EU after next April.

So far I have written to my member of the European parliament, my member of parliament and the Prime Minister about my concerns.

If you are in Britain, you can find your MP on this website:
http://www.parliament.uk/directories/directories.cfm

and your MEP on this website:
http://www.europarl.org.uk/uk_meps/MembersMain.htm

MEPs represent regions and parties rather than constituencies.

Take care,

Christine
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Old 09-27-2007, 06:53 AM   #2
tricia keegan
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Christine I've already sent off some stern letters about this after I read Lani's post yesterday. I was amazed i'd heard nothing at all about this until I read the details here. Shocking!! Thank you Lani
P.S...I've also posted this info on some other sites I am a member of so hopefully enough people can stop this happening.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
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Old 09-27-2007, 10:26 PM   #3
fullofbeans
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I am in the USA at the moment but I have already emailed Breast cancer and Macmillan and asked them that they should get organised between all the cancer charities to stop this very very very silly EU Directive. It is hard enough as it is to get an MRI in the UK!!!
What I do not understand is what will they do with all the millions of pounds/Euros of equipments?????
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 09-27-2007, 11:01 PM   #4
fullofbeans
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The more I think about it the more I think that it is simply impossible the the directive will not be reviewed to have a derogation for MRI scanning accross the EU..

What are they going to do with all the specialists radiologist and the million of MRI scans required every year?

Mind you a similarly well design EU Directive did try to outlaw unpasterised cheese from France (and EU).. that would have been the day!
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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