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02-14-2007, 08:51 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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The Utah TriciaK checkin' in!
THe info under my picture says Mesa, Az.,and I don't know how to change it, but I have been in St George, Utah for the past 4 months. This is now my permanent home and we love it here! I haven't posted for awhile but do keep up with others' posts. Like so many of you, I read every post prayerfully, sometimes with tears, sometimes with a smile. It's so good to read good news and see so many with courage and determination to keep fighting. You are truly Amazon warriors! I thought I should tell you that I had a PET scan a couple of weeks ago, and although my cancer markers are low-normal, the new oncologist I have now since moving felt that the left lung showed something "worrisome". I was not too worried because I have been NED the previous 2 PETS, and I suspect anything showing up is just the residue or scar tissue or whatever from the cancer mets in that left lung. My doctor felt a bronchoscopy was a good idea, though. I had one in 2004 when first diagnosed with this third round of mets, and it was not a good experience. I really didn't want to do another, but we have found that the medical programs here in St George, Utah are really outstanding, so decided to go ahead with this second bronchoscopy. I was at the hospital this morning at 6am (!) and went through the procedure. They did use my port, and everyone was so kind and helpful. The doctor explained in detail everything that she would do---which impressed me, because when I had tests in Az. no one would tell me anything unless I insisted, and they didn't want to use the port until I threatened to go home! The bronchoscopy was not fun, but I was under anesthesia a lot better than last time. It is 9pm now and I am just beginning to feel a little bit normal and be able to breathe and move without a lot of pain. I didn't lose much blood though, and I guess sleeping all day was the best way to recover. I'm glad it is over, and will let you know the results. I haven't read of many others having a bronchoscopy, but if you have to have one, while it is not fun, it is bearable. The doctor took several biopsy tissues and checked out the lower lung quite thoroughly. The results should tell us exactly what is happening and what to do next. Hopefully everything is fine. If not I am prepared to go back on herceptin or whatever will work best. I will continue to say "I am fighting cancer" and never "I have cancer"! I've fought BC for over 20 years now and I am not ready to give up yet! This website is still the greatest, and I send my love and prayers to all of you! Hugs, Tricia
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02-14-2007, 09:33 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Well Tricia, it's nice to hear from you. Thanks for the update - and I hope that your tests come back with good results. Sounds like quite an ordeal, but it's good your new oncologist is thorough.
Take care, I'll keep you especially in my prayers
Love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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02-15-2007, 05:57 AM
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#3
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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It is good to hear from you. Thanks for the info on the bronchoscopy. I hope the tests are negative. One think I am learning as a new cancer survivor is that doctors give me tests "to be sure." I bet I wouldn't get these tests if I hadn't had cancer. I remind myself to be grateful for the excellent health care -- as I'm gagging!! I was in Utah years ago and think it is one of the most physically beautiful of all the states.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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02-15-2007, 07:16 AM
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#4
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Hi Tricia,
Thank you for the update and I hope that the test results prove that it is just scar tissue.
How are you feeling today? I hope that now that the test is over and because you rested all day yesterday that you are feeling better today.
Best wishes to you.
Love and peace, Carolyns
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02-15-2007, 11:10 AM
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#5
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Good to have you back!
I am happy you are back as I have missed your postings. Will keep praying the tests all come out showing only scar tissue. Keep up the great spirit. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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02-15-2007, 12:24 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Good luck!
Tricia
Sorry to hear you had to endure this again but I'll be hoping and praying for scar tissue benign results for you and hope you recover quickly!
I had a bone scan last week and the results were negative and although I was pleased my Dr was checking it out I know how worried we all become having these tests.
You're a fighter and an inspiration and I wish you very good health for another 20 years!!!
From the Irish Tricia K
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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02-15-2007, 03:30 PM
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#7
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Go Tricia
Tricia, YOU are the Amazon Warrior! You are so amazing, and I'm so glad to hear your bronchoscopy went well. It sounds like your new "Team Tricia" is on the ball 
Rest up and do let us know the results; keeping you in my thoughts and prayers.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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02-15-2007, 09:14 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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So good to hear from you and hoping that all shows clear.
________
Vaporizer Review
Last edited by sassy; 08-22-2011 at 09:06 AM..
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02-15-2007, 09:20 PM
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#9
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Senior Member
Join Date: Oct 2005
Posts: 215
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You go girl,keep up the good work..
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02-15-2007, 10:26 PM
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#10
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Great to hear from you and great to hear your good attitude remains. Sounds like you are in good hands in Utah. I hope you receive a good report. Please keep us posted.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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02-16-2007, 08:06 AM
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#11
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Tricia
So glad the bronchoscope is over and you are back on the mend.....I love your saying "I am fighting cancer"....that is something we all need to remind ourselves....we have the option to fight with all we have. So nice to see your smiling face back on the board...we missed you.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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02-17-2007, 07:20 PM
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#12
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Senior Member
Join Date: Oct 2005
Location: Boise, Idaho
Posts: 758
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Tricia, Ken and I are planning another trip to Spring Training. I'm sorry you won't be there but maybe we can drive thru St. George and see you. I think we have some others from this site in Phoenix so maybe I'll try to hook up with them. I am curious as to how your husband is doing since his cardiac problems. Let us know.
Love & hugs, Marlys
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02-18-2007, 07:23 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Marlys, I would love to see you again! My husband and I are both doing well and love St George. Be sure to let us know if you will be through here. Hugs, Tricia
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02-20-2007, 11:06 AM
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#14
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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You are amazing
I hope you are feeling recuperated by now from those procedures you mentioned. I hope, hope, hope you have great news when all results are in. thank you for your response to my post yesterday. Whenever I see your beautiful picture pop up, I smile. I will post puppy pics as soon as I retrieve my camera from my sister's house. I left it there like a dork, but I think a little cuteness can brighten anyone's day. Love to you.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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