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Old 01-18-2008, 07:22 PM   #1
tdonnelly
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CT Scans

I am scheduled next week for a chest and brain CT Scan and a Muga Scan all in the same day. I am also suppose to get an updated Mammogram but my radiated breast is too swollen so will wait on that another month. I am concerned about all the Nuclear Medicine I will be receiving in one day as well as the high volume of Radiation. I just finished 28 Rad treatments. My ongoing symptoms warrant the tests but I am still afraid since reading about the use of Scans causing cancer. How do you know what is the right thing to do? After all is said and done the onc said we would discuss the test results in three weeks when I come back for my next Herceptin treatment. Is she kidding; tell a cancer patient to wait three weeks pondering the results. Sounds more like the ultimate in testing the patience of the patient. Well at least I still have my sense of humor. She probably doesn't realize the time frame and what it does to our perception of things. Thanks.
Tamara
Invasive Ductal Carcinoma 11/2006 HER2+
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Old 01-18-2008, 08:01 PM   #2
Jackie07
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It is annoying to have to have all those 'radiation' targeted on your body, isn't it? However, compared to the 'invasive' surgeries and chemotherapy, radiation is really not that bad. They scheduled all the procedures in the same day so we don't have to make multiple trips. Since each one is on different part of the body and the doses are low, there's really no need to worry.

Did the medical staff put anything on your breast after the radiation? Ask the doctor to give you something for the redness (burns) on your skin. I was given some small tubes of samples and then I purchased one with prescription.

I had to get a doctor friend of mine and my family doctor to intervene when my surgery date was going to be delayed. But generally speaking, if they are not in a hurry to see you after the scan, it usually means good news. And if they did find something during the scan, the technician will contact the doctor right away. Then the doctor will decide if she needs to see you sooner.
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Old 01-18-2008, 10:19 PM   #3
Lolly
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Yes, I've had several nuclear tests on the same day; just be sure and drink LOTS of water for the day, and the following day. Your kidneys will thank you.
As far as waiting 3 weeks, you don't have to wait that long to find out, just tell the facilities you want a copy of the report that will be sent to your doctor, and they can either mail it to you or if you're close, tell them you'll pick it up.
If there's anything that "jumps out" at you, you can then call your onc's office and ask for a call back as you have the report in hand and have some concerns. That will get her attention. Honestly, I don't know what some of these doctors are thinking.

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Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 01-19-2008, 09:09 AM   #4
Cathya
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Tamara;

I feel exactly the same way you do with waiting so I was very happy when my onc's nurse clarified things for me.......if they do a test and anything negative turns up they call me in right away. It's the old no news is good news situation. I am very happy knowing now that if I have tests between appointments and hear nothing from the doctor I can rest assured that all is well. I would ask your onc and his nurse how this is handled at his office. It would be best to clarify how tests results are handled as no doubt this is only the beginning.

After my radiation I also had hot, swollen breasts. I used to carry a baby wash cloth in a little baggy with some ice. I would put it on my breast whenever it was uncomfortable. I really helped. Like Lolly I also had a cream of some sort but I can't remember what.....lol....the old chemo brain.

Cathy
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Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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