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Old 02-26-2013, 03:29 PM   #1
IrvineFriend
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Shouldn't take a fever lightly!

I'm bored because this is going on my 2nd day in the hospital for neutropenic fever. My wbc counts were alarmingly low so my onc sternly told me that if my temp hits 101 go to the ER and it may be that night -and he was right. That same day while at work it went from 97.4 to 101.3 in a little over an hour. Hopped in the car and a few minutes later in the ER it was 102.7. I didn't feel too bad, just chilled but had I not been carrying a thermometer in my purse at work, who knows how high it would have gone. So now I'm off work (again) for a couple days getting lots of antibiotics IV and a neulasta injection. Can't go home until I have an immune system

Seems to always be something but I'm getting used to it I guess.

I'm sure when I went to my first onc appt. they gave me datasheets on what to eat, etc. but I guess I never really paid attention. While on chemo, no salads, raw veggies and pre-cut fruit, etc. I figured that was for foreign countries! Anway I'm going to be more careful now as I was getting a little irresponsible following doctors orders.
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Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 02-26-2013, 03:41 PM   #2
jaykay
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Re: Shouldn't take a fever lightly!

Don't beat yourself up. I think every onc is different. I asked mine if I should avoid salads, etc. and she said she didn't believe in avoiding veggies and salads.

I get a Neulasta shot the day after every chemo and have been okay (other than the Neulasta side effects)

I hope you're out of there soon!

Janis
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March, 2000: 48, Post menopausal (5 yrs HRT) Left breast, IDC 3mm/DCIS 1.6cm, ER+/PR-/Her2+++, mod differentiated, MIB low, lumpectomy, node neg via SNB, rads=33 Stage 1a
June, 2000: Tamox 4.5 years,Femara for 5 years (end in Jan. 2010)
Sept, 2012: 61, Via mamm, ultrasound, biopsy, right breast, 2.3cm tumor, ER+/PR-/Her2+++, poorly diff, KI67 60-70%
BRCA 1 and 2 negative
October, 2012: Bi Mast with tissue expanders, port placement
Final Path: IDC 2.8cm, DCIS, 1/4 sentinal nodes positive (@#$%). Stage IIB
Nov 29, 2012: Begin TCH/6x/every 3 wks, H for 1 year/every 3 weeks.
March 14, 2013: Finished chemo
April 9, 2013: Begin radiation 28x
May 22, 2013: Finished rads
June 1st, 2013: Started Aromasin for 5 yrs.
July 15, 2013: Switched to Letrozole (Femara). Probably for the rest of my life
October 16, 2013: Exchange surgery
October 31, 2013: Finished Herceptin
December 5, 2013: Port removed
Glad this year is over!
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Old 02-26-2013, 04:58 PM   #3
tricia keegan
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Re: Shouldn't take a fever lightly!

I hope you feel better soon and we all can only do our best and hope its right!
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-27-2013, 07:39 AM   #4
NEDenise
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Re: Shouldn't take a fever lightly!

Julie!
I'm so sorry to hear our latest trouble...but soooo glad you posted. I was starting to wonder if you were okay. Scrabble buddies are near and dear to my heart!

Yikes! It never ceases to amaze me how fast things can go south for one of us. Thank God you were vigilent about taking your temp! I got neulasta after each infusion and hated the achiness afterward...but reading about what you're going through...every ache and pain was worth it! You poor thing!

I hope all is well and you are safe at home very soon!

Sending immunity-boosting energy, and prayers your way...
Denise
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Old 03-17-2013, 06:17 PM   #5
CoolBreeze
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Re: Shouldn't take a fever lightly!

I went septic once from an infection. It is not to be taken lightly, having no immune system. Glad you are okay!
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08/17/09 Dx'd.
Multifocal/multicentric IDC, largest 3.4 cm, associated ADH, LCIS, DCIS
HER2+ ER+/PR- Grade 3, Node Negative

10/20/2009: Right mastectomy, reconstruction with TE
12/02/2009: Six rounds TCH, switched to Taxol halfway through due to neuropathy
03/31/2010: Finished chemo
05/01/2010: Began tamoxifen, the worst drug ever
11/18/2010: Reconstruction completed
12/02/2010: Finished herceptin
05/21/2011: Liver Mets. Quit Tamoxifen
06/22/2011: Navelbine/Zometa/Herceptin
10/03/2011: Liver Resection, left lobe. Microwave ablation, right lobe - going for cure!
11/26/2011: C-Diff Superbug Infection, "worst case doctor had seen in 20 years"
03/28/2012: Progression in ablated section of the liver - no more cure. Started Abraxane, continue herceptin/zometa
10/10/2012: Progression continues, started Halaven, along with herceptin and zometa.
01/15/2013: Progression continues, started Gemzar and Perjeta, an unusual combo, continuing with herceptin and zometa
03/13/2013: Quit Gemzar, body just won't handle it. Staying on herceptin, zometa and perjeta.
04/03/2013: CT shows 50% regression in tumor, so am starting back on Gemzar with dose reduction, staying with perjeta/herceptin/zometa. Can't argue with success!
05/09/2013: Discussing SBRT with Radiology due to inability of bone marrow to recover from chemo.
06/07/2013: Fiducial placement for SBRT
07/03/2013: Chemo discontinued, on Perjeta, Herceptin and Zometa alone
07/25/2013: SBRT (gamma knife) begins
08/01/2013: SBRT completed
08/15/2013: STABLE! continuing with Perjeta, Herceptin, Zometa
06/18/2014: ***** NED!!!!***** continuing with Perjeta, Herceptin, Zometa
01/29/2014: Still NED. continuing with Perjeta, Herceptin. Zometa lowered to every 3 months instead of monthly.
11/08/2015: Progression throughout abdomen and lungs. Started TDM-1, aka Kadcyla. Other meds discontinued. Remission was nice while it lasted.

5/27/18: Stable. Kadcyla put me right back in the barn. I have two teeny spots on my lungs that are metabolically inactive, and liver is clean.

I’m beating this MFer. I was 51 when this started and had two kids, 22 and 12. Now I’m 60. My oldest got married and trying to start s family. My youngesg graduates from Caltech this June. My stepdaughter gave me grandkids. Life is fantastic.
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Old 03-17-2013, 07:14 PM   #6
Kkmom
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Re: Shouldn't take a fever lightly!

Thanks for the post about fever. It is good information for all of us. My MO also emphasized about calling them if I should have any fever, but I just didn't think too much about it. I have had a cold for the past 10 days, with lost of coughing at night, but no fever.
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Old 03-17-2013, 07:21 PM   #7
vballmom
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Re: Shouldn't take a fever lightly!

Glad you are being well taken care of! That happened to me - I was in the hospital for five days. I didn't feel that bad, but they weren't going to release me until my counts when up. When they finally did, they skyrocketed. I ended up on daily neupogen instead of neulasta. Hope you are sprung soon!
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Old 03-17-2013, 07:24 PM   #8
europa
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Re: Shouldn't take a fever lightly!

Oh I fought fevers. But stubborn me...I was so determined not to end up at the hospital. I drank a ton of water and stayed in bed until the fevers would go down. My Oncologist didn't push me to go to the hospital unless I had other symptoms like a headache, or a soar throat, nausea....etc. Hope you feel better soon!
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DX 10/2011
PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


www.mychemobag.org
www.facebook.com/mychemobag

8 YEARS NED
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