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Old 10-02-2012, 06:39 PM   #1
StephN
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Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Red face Visit to neurosurgeon

Well, my friends, after some research on various possible ways/approaches to treat my trapped nerve problem, it is decided. Anyone who wants to review what happened to me can look here:

http://her2support.org/vbulletin/showthread.php?t=56002

Thanks to you who remembered me in your prayers for a quick solution to this terrible pain. The neurosurgeon I consulted is the same one who fixed my cerebral/spinal fluid leak in my head in 2006, exactly 6 years ago. Of course he remembered me and was surprised to see me sitting in a wheel chair in front of him, once he put the image on the screen with my face. (Naturally he wanted to examine the back of my head and admire his work!)

He proposed that my problem is very clear, but rare; only 1/100 or so back problems are like mine. So, here we go again, and I am SO GLAD I came to someone I knew had a lot of experience (and a Seattle TOP DOC), and not some "young Turk" doc who may have not seen my exact problem.

Left lateral microdiscectomy, which will require a little different (but small) incision to access the errant piece of disc. He says I have an 85% average chance of full recovery, and I put those odds even higher with him on the job and getting at this in as short a period as possible. So he told his scheduler to put me in the "next available" slot. Since he does surgeries only on Wed/Thurs, I am on for next week. May get in Wed orThursday for sure.

Will update this with the date when I have it firm. Meantime, I am starting to get a rather nasty case of Cabin Fever, having been housebound for a month with a few more weeks ahead of me until I am recovered and can drive again. Oh Happy Day, that will be!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.

Last edited by StephN; 10-03-2012 at 11:15 AM..
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