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Old 03-29-2006, 06:10 PM   #1
therese davis
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Unhappy Herceptin ?

Can anyone tell me precisely what Herceptin is made from?
Judging by its' cost, I'd say it is derived from magical Unicorn horns! Not to be silly or slight, but I read yesterday that a years dosage can cost $100,000.00 No wonder people go bankrupt from illnesses! My uncle would like to have his wife's breast cancer treated with this drug, but I don't think that they can afford it.
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Old 03-29-2006, 09:08 PM   #2
Sheila
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Location: Morris, IL
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Therese
My Herceptin costs about 9000.00 every 3 weeks...if someone cannot afford it or their insurance wont cover it, they need to contact the drug maker, Genentech as they are willing to get it to patients who need it...there is a link on this board to contact them ...go to home and search from there, or Joe can give you the info...email Her2support.org

Hope this helps...this company was very generous when my daughter needed growth hormone that they made and our insurance would not pay for most of it...they supplied it for free!
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Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 03-29-2006, 09:32 PM   #3
Joe
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Here it be - Genentechs reimbursement program:

https://www.spoconline.com/spoconline/index.jsp

Regards
Joe
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Old 03-30-2006, 09:13 AM   #4
therese davis
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Thank you Sheila, I will look into it. I'm sure my uncle and aunt will be most grateful for any and all information I can attain also. They are elderly and do not have a computer for researching, so I'm doing the best I can, thousands of miles away . . . . .
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