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Old 01-11-2011, 04:55 PM   #1
Ceesun
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Cool Tykerb-Herceptin update #2
Just had my herceptin infusion today and had a follow up with my oncologist and his visit to the tumor board. The consensus is that the tykerb-herceptin is keeping the lung nodule in check and so I will continue with that treatment. He will continue to watch the little spot on the other side...no need for lung biopsy and no cyberknife at this time. He said that cyberknife remains a possibility for the little area and also now the larger one in the future. I was so glad to hear that! Pet scan showed no other activity. He said you can do your treatments in Florida in the months ahead. Happy New Year. So, I will be leaving Michigan and our 4 inches of new snow....eventually and go down to Florida in search of sun, sand, and Vitamin D. Ceesun
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Old 01-12-2011, 04:38 AM   #2
Ellie F
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Re: Tykerb-Herceptin update #2
Great news. I am soo pleased to hear this.

Ellie
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Old 01-12-2011, 08:48 AM   #3
michka
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Re: Tykerb-Herceptin update #2
Good plan! Go to Florida and send cyber-sun to all of us. But the first real ray of sun is that T&H is keeping everything under control. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 01-12-2011, 09:24 AM   #4
PinkGirl
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Re: Tykerb-Herceptin update #2
That's great news Ceese. Have fun in Florida!
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09


" I yam what I yam." - Popeye

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Old 01-12-2011, 12:10 PM   #5
Joan M
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Re: Tykerb-Herceptin update #2
Ceesun,

Great news on the drug combo! Enjoy the sunshine in Florida.

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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