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Old 08-07-2010, 02:13 PM   #1
verainlove
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Location: UK
Posts: 24
Anyone with Rhodiola experience?
Hi

While waiting for any treatment from my doctors I've been looking for something useful to do myself.

Found Rhodiola Rosea benefits are great. Hope to have it instead of antidepressants I've been having for months (and dreamed to drop as I know it may affect BC treatment). Also apparently it may help with my liver mets. So I'd like to give it a try and actually just started it.

I would appriciate any information about the dose and length of time anyone used Rhodiola.

Peace and Love

Galina
__________________
Dx 11/06 age 60
2.8cm Grade 2
ER+++/PR+/HER2+++
R. mast., 5 FEC, 6 Taxotere, 35 radiation
11 mth Herceptin
while on Arimidex 11/09 recurrence to bones (widespread), liver
5 rad. on spine, 6 Taxotere, Herceptin, Zometa
while on this, progression
Xeloda, Zometa every 3 weeks
07/10 stopped Xeloda - doesn't work
having just Zometa, waiting for another treatment
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Old 08-07-2010, 05:54 PM   #2
Jackie07
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Re: Anyone with Rhodiola experience?
Galina,

I've located Rhodiola Rosea on Wikipedia http://en.wikipedia.org/wiki/Rhodiola_rosea, but could not find it on MedlinePlus http://medlineplus.gov/. My guess is that there's not solid data and research on this ingredient yet.

We have several members who have got their [liver] mets under control. You probably will find some good treatment information by searching under 'liver mets' or 'bone mets'. Check out the 'long-time survivors' and 'long-term survivors' threads also.

Many new treatment methods are listed in the 'Clinical trials'. We've been told that T-DM1 is very likely to be approved by January. Hang in there and keep us posted.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 08-08-2010 at 03:20 AM..
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Old 08-08-2010, 02:26 AM   #3
Rich66
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Re: Anyone with Rhodiola experience?
A little bit of info here:
http://her2support.org/vbulletin/sho...807#post230807
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Mom's treatment history (link)
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Old 08-08-2010, 02:29 PM   #4
verainlove
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Re: Anyone with Rhodiola experience?
Thank you for trying to help me. But I have enough information about RR from Google and this website. Just been hoping to hear from somebody who DID used it at some stage.

Jackie, I'm sorry, but I can't take your advice about finding a common treatment for liver mets as my onc simply wouldn't listen to me. And he thinks trials are not for me too. He's a professor, the head of a very busy BC department in a big hospital and apparently doesn't believe I'm able to say something useful about my treatment. Sad but I can do nothing about it.

Thank you again for your kind replys and concern.

Peace and Love

Galina
__________________
Dx 11/06 age 60
2.8cm Grade 2
ER+++/PR+/HER2+++
R. mast., 5 FEC, 6 Taxotere, 35 radiation
11 mth Herceptin
while on Arimidex 11/09 recurrence to bones (widespread), liver
5 rad. on spine, 6 Taxotere, Herceptin, Zometa
while on this, progression
Xeloda, Zometa every 3 weeks
07/10 stopped Xeloda - doesn't work
having just Zometa, waiting for another treatment
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Old 08-08-2010, 05:48 PM   #5
Jackie07
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Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
Re: Anyone with Rhodiola experience?
Galina,

My guess is that your doctor is giving you a Herceptin holiday. I'll bet that he's also waiting for the T-DM1 approval in January.

Try to relax and focus on healing. Keep yourself in good physical shape (with strong heart) to get ready for your winning battle.

I'm sending good vibes your way.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe
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