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news + Non scientific but makes me feel good
I have had my tumours in my airways oblitarated (95% removed), so I breathe more easily without making a noise like if I was snoring awake. it was getting pretty bad and felt like i would chock sometimes.
[PS: I do not want to be mis-read I still have a lot of tumors in my lungs inclded 2 that are over 6>cm and smaller ones. The 95 % refers to the blockage only of the airways (in the carinas and bellow) they burned the blockage doing a sort bronchoschopy with a laser at the end, but cannot remove tumours else where with this menthod unfortunately.]
I am going through criteria and biopsy for a trial.. will let you know when it is comfirmed I am accepted (do not want to jinx it), it a super lapatinb type, next generation trialled in the UK and Japan.
Otherwise ouside of science:
the following makes me feel good , don't judge me!!
http://www.youtube.com/watch?v=2XnSgIFnF3I
http://www.youtube.com/watch?v=ufVjdvRw4LM
I after all beleive in the power of praying
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
Last edited by fullofbeans; 12-04-2012 at 01:05 AM..
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