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Old 12-01-2010, 03:28 PM   #1
Chelee
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Location: Southern, CA
Posts: 2,511
Has anyone heard from jhandley yet?

I'm getting a bit concerned about Jackie. (jhandley) She had alot going on and it's not like her to not check in here. I started a thread a quite a while ago asking about her and no one had heard from her...nor had she posted at that time? I also sent her a PM the beginning of Nov and still no reply?

She had recurred to liver and beat that back. Then brain mets and had wbr. Then I believe they found bone mets on spine and she was dealing with that too. She had more then her share and I'm hoping someone here has heard from her? Last time it shows she logged in on the board was 10-8-10. Anyone know how she is doing?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-01-2010, 03:56 PM   #2
chrislmelb
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Location: melbourne, australia
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Re: Has anyone heard from jhandley yet?

I just emailed her 2 minutes ago and her email address was wrong. I am wondering about her too as she hasn't logged on for 2 months. I will see if i have another email addresss for her in my mail program. I will let you know if i hear more.
I have found her mobile phone number and sent her a text message.
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Christine

DX Sept 03 age 40 Stage 2B Grade 3 mastectomy (after 2 prior breast conserving surgeries)
"at least" 2.3 cm 3/12 nodes ER+/PR+ Her2+++
8 FEC. Tamoxifen then Arimidex. Ovaries out.
"late" Herceptin for 2 years (18months after chemo) on HERA trial. finished Herceptin Nov 2007.
Multiple bone mets May 2012 and now liver August 2012.
Abraxne, Herceptin and Zometa.
June 2013 Tykerb, Xeloda and Xgeva

Last edited by chrislmelb; 12-01-2010 at 04:04 PM..
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Old 12-01-2010, 06:04 PM   #3
Chelee
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Re: Has anyone heard from jhandley yet?

Yes it's been since Oct. 8th since she last logged on. I sure hope she's just taking a break after all she has been through?

Thanks Christine for trying to get in touch with her...much appreciated.

If anyone else out there has heard from her pls let us know.

Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 12-01-2010, 06:45 PM   #4
Laurel
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Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Re: Has anyone heard from jhandley yet?

Chelee,

I am so glad you are keeping track of your chicks. I have wondered about Jackie too. You are sure correct in saying she has had alot to contend with. I know it is hard to post when you are not feeling well. Let's hope she is feeling so much improved she is too busy to post!
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 12-02-2010, 12:18 AM   #5
Trish
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Location: Melbourne, Australia
Posts: 434
Re: Has anyone heard from jhandley yet?

I've been worried and keen to hear how she is too. Thanks for raising it Chelee.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 12-02-2010, 05:22 AM   #6
Ellie F
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Join Date: Feb 2009
Posts: 1,526
Re: Has anyone heard from jhandley yet?

I have been thinking of her also.

Another sister who doesn't seem to have posted for a while is Tonya (Faith in him). Has anyone heard from her?

Ellie
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