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Old 12-16-2007, 04:47 PM   #1
Faith in Him
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In a Fog

The only way I can describe this is that, I feel like I have been in a fog the last month or so. I had one bout of dizziness that I mentioned to the onc. but he did not seem too concerned. Also, I have had ear pain on and off since taxol. I know ear problems can cause dizziness or balance.

I tried to give my self all kinds of tests. Stand on one foot, jump up and down, whipp my head around like crazy (the kids think I'm nuts) to try and see if I lose my balance or have blurred vision. So far so good. No headaches. I have became preoccupied with worry about brain mets. I just can't explain this fog. Could it just be the tremendous amount of stress that you go through during treatment and then when things start slowing down, you notice the fog?

I don't want to cry wolf every time I go to the onc but I do want to be diligent in my care.

Any opinions?

Thanks ladies,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 12-16-2007, 05:16 PM   #2
hutchibk
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Ask for a brain MRI. Out of an abundance of caution. It is better to rule things out. Please don't take any chances...
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 12-16-2007, 05:21 PM   #3
Mary Anne in TX
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I totally agree with Brenda. Play it safe and have the tests. Then you can take a breath and relax for a bit because you have evidence that you're ok
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-16-2007, 05:34 PM   #4
KellyA
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Hi Tonya,

I am sorry that you are having difficulties, but I would bet that it was all of the meds. I had the same difficulties, and they got worse as the treatment went on (I guess that it was cumulative stuff). There were times that I was not only in a fog, but actually very confused, and one time that scared me half to death- I got "lost" a few miles from our house, an area that I know very well (we've lived here for 15 years) and I couldn't seem to find the exact turn point to get home. It was so wierd because I knew where I wanted to go, just couldn't find it. To make you feel better, the fog has cleared now, and I feel like myself again. At one point though during treatment I had to be very frank and let people know that I was having difficulties with my concentration, memory and attention span so that they understood and could help when necessary. Make sure that you are getting enough sleep- it was much worse when I was tired, and that you are drinking plenty of water and getting lots of fresh air- that always made me feel better.

Love, Kelly
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dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

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Old 12-16-2007, 07:21 PM   #5
Mary Jo
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Hi Tonya,

First off I want to tell you what a wonderful picture you have shared with us. A beautiful family you have. Just beautiful.

I agree with everything the other ladies have said. If you are afraid and not sure if there is an "issue" then having it checked out is the best thing. If for no other reason that peace of mind.

We've been through a lot - treatment AND stress. Those 2 things can cause incredible things to happen to us BUT when in doubt the best thing to do is get it checked out. There is no better feeling than peace of mind.

Love & peace,

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-16-2007, 09:27 PM   #6
Bev
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I didn't know I was in a fog until it lifted which should be happening any time now for you. I definately remember shortly after taxol feeling like a big cloud lifting. If it makes you feel better, get the scan. I don't remember, but I think dizzy or headache are key words to use to get scan. I think they are looking for something being persistent and not happening once.

If it were me, I think I would see how the next 2 weeks go and then decide if you think you need an onc appt. Don't worry too much and enjoy the holidays.

Best wishes Tonya, Bev
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