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Old 10-14-2010, 06:41 AM   #1
LoriE
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Unhappy Doc found a mass

I'm having a bit of a scare and hope you all can tell me this is nothing to worry about. I've been losing a lot of weight lately and, unfortunately, haven't been dieting. I told my doctor so she poked around and - dang it - found a mass in my abdomen. She stresses that it's mobile. Said it's in the right middle. She sent me for a CT scan and today a flouroscope exam. So - I'm trying really hard to convince myself this is nothing to worry about. Has anyone had this happen to them? What was it? How worried should I be?

Lori
PS - I'm a lurker around here. Love you all.
__________________
Lori

Diagnosed 07/05, Stage 1
Extensive DCIS, .5 mm invasive
Mast
No nodes.
10/05 4 A/C & 1 yr of Herceptin
06 Proph Mast
Lat Flap Recon - failed on one side, replaced w/expander
NED
HER + 3, ER-, PR-
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Old 10-14-2010, 07:43 AM   #2
PinkGirl
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Re: Doc found a mass

Hi LoriE ... I know it's very scary waiting for answers
and test results. I'll keep all my fingers and toes crossed
for you ... keep us posted ... I'm sorry you have to deal
with this.
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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Old 10-14-2010, 05:20 PM   #3
sassy
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Re: Doc found a mass

Hey Lori,

Can't give any information, but want you to know I 'm thinking of you. Take a deep breath and hang in there. Be sure to keep us updated....we're here behind you!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 10-14-2010, 05:40 PM   #4
krisvell
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Re: Doc found a mass

Hi Lori,
I'll pray for you that you will get good news. I'm routing for you.
Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 10-14-2010, 05:53 PM   #5
Joanna J
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Re: Doc found a mass

Lori,i am too a worrier,and you need to stay focused,the worry can turn out to be nothing at all,and then......you have worried for nothing,i know it is hard to not be concerned,maybe you can get in touch w/the dr. Or his nurse and tell them that you would like to know asap......i am personally praying for you....big hugs for you.........joanna j
__________________
found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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Old 10-14-2010, 09:31 PM   #6
flynny
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Re: Doc found a mass

praying that all the tests show everything is all good!
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 10-14-2010, 09:45 PM   #7
Jackie07
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Re: Doc found a mass

Lori,

My experience is that if they had found 'something', they would have called you right away, or schedule an appointment to tell you what it is and how to take care of it. A different lab/scan is usually used to confirm/eliminate the possibility.

I know what's going through your mind. When I was scheduled for an ultrasound after I'd just had an abdominal CT scan, I was 100% sure they had found something. Turned out it was a benign liver hemangioma.

One time I was having irritation/pain in the center of my belly. I was so sure I was getting metastasis. I went to my oncologist and he put me on the exam table and turned me left and right. Then he told me it was 'diastasis recti'. The Yoga class I had attended just two times had done some damage to my belly muscle because I wasn't aware the bc surgery had stretched that area very tight.

Have I learned not to worry? Not really. It's not easy. But I hope the 'benign' possibility can ease your mind a little.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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Tamoxifen B. scan
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3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
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Last edited by Jackie07; 10-14-2010 at 09:56 PM..
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Old 10-15-2010, 04:21 PM   #8
tricia keegan
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Re: Doc found a mass

I have'nt had this Lorie, but thinking of you and hoping it's nothing serious. ((((hugs))))
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 10-15-2010, 05:27 PM   #9
karen z
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Re: Doc found a mass

Lori,
I haven't had experience with this but wanted you to know I am thinking of you and sending good thoughts your way. karen
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Old 10-15-2010, 10:42 PM   #10
Paty
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Re: Doc found a mass

Praying and keeping my fingers crossed that everything will be fine with you. Sending good vibes and a big hug.

Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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Old 10-17-2010, 03:44 PM   #11
LoriE
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Re: Doc found a mass

The results are in and........nothing! They found nothing except diverticula. They are large and in an uncommon location so that's what my doctor was feeling. Wow - nothing like hearing the word "mass" to take your mind to all the wrong places. Thanks so much for all of your supportive words. You guys are the best.

Lori
__________________
Lori

Diagnosed 07/05, Stage 1
Extensive DCIS, .5 mm invasive
Mast
No nodes.
10/05 4 A/C & 1 yr of Herceptin
06 Proph Mast
Lat Flap Recon - failed on one side, replaced w/expander
NED
HER + 3, ER-, PR-
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Old 10-17-2010, 03:50 PM   #12
karen z
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Re: Doc found a mass

great news Lori!
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Old 10-17-2010, 11:48 PM   #13
Lien
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Re: Doc found a mass

What a relief! Now what are they going to do about the diverticula? Are they infected? It's nice to have a slimming aid, but it needs to stop somewhere.

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 10-18-2010, 07:07 AM   #14
caya
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Re: Doc found a mass

Big relief!! So happy for you Lori!!

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 10-20-2010, 06:35 AM   #15
PinkGirl
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Re: Doc found a mass

Fabulous news LoriE ... YEAH for you ....
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
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Old 10-20-2010, 04:02 PM   #16
krisvell
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Re: Doc found a mass

Lori,
You made my day! Congrats to you.

Kris....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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