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Osteoporosis
Hi everyone
I have recently been diagnosed with osteoporosis (I am 39). I have stage4 disease with lung mets. I am currently on Tykerb and Xeloda.
I am wondering what to do about my treatment for osteoporosis. My one is keen to treat me - thank goodness she hasn't written me off yet. We are talking Zometa or Denosumab (Xgeva). I am not keen on Fosamax.
My one is tossing up whether I have a cancer dosage (as in a dosage for bone mets which I don't have) or an osteoporosis dosage as she said there is some very limited evidence that perhaps it cold be preventative.
Any thoughts and experiences would be appreciated. I am hormone negative but we assume premature menopause from chemo and family history have played a role here.
What are other people doing?
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Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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