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Old 04-15-2010, 08:00 AM   #1
jhandley
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Unhappy Breast changes in remaining breast

Hi all
Well it is 9 years since my original dx and about 7 months off herceptin and tonight I noticed that my R breast looks and feels a bit different to normal. I have also had a niggling pain in the tip of my L shoulder for about 6-8 weeks which hasnt gone away so now I am a bit worried.
Since I was/am Stage IV but have been in remission for 4.5 years I was hoping for a bigger break from everything. I had a CT scan 3 months ago which was fine.
I think the best outcome would be tumour in remaining breast and nothing else....worst outcome is tumours eslewhere as well.

So a few phone calls tomorrow and some scans pronto!
Wish me luck.

Jackie(down under)
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Old 04-15-2010, 08:55 AM   #2
Faith in Him
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Re: Breast changes in remaining breast

Jackie,

I hope it is nothing. I'll be keeping you in my thoughts.

Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 04-15-2010, 09:03 AM   #3
whatz
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Re: Breast changes in remaining breast

Hi Jackie,
Ditto to what Tonya said. Keeping you in prayer. Hopefully and probably nothing but better to be certain. Glad you are getting it checked.
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4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 04-15-2010, 09:13 AM   #4
Shobha
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Re: Breast changes in remaining breast

Adding my prayers and best wishes. I have a strong feeling that scans will be all clear. I had a odd pain on my left shoulder for about 3 months and it turned to be nothing. I was told perhaps a bad pillow or posture may have contributed to it.

Sending many positive thoughts!
hugs,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 04-15-2010, 09:31 AM   #5
Mary Anne in TX
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Re: Breast changes in remaining breast

I'm sending good wishes for good results also. I hope it's but the constant nagging feeling of a return and nothing more. Please know you carry our prayers as you go for your scans. ma
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Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 04-15-2010, 09:38 AM   #6
bejuce
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Re: Breast changes in remaining breast

Hoping and praying it's nothing more than just a scare...
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ER+ (30%)/PR-/HER-2+, stage 3

Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin


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Old 04-15-2010, 09:51 AM   #7
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Re: Breast changes in remaining breast

What about best scenario being benign breast changes in remaining breast and some totally un-cancer related pain in your left shoulder? Hope this is what you find out.
Chris
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Old 04-15-2010, 12:30 PM   #8
schoolteacher
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Re: Breast changes in remaining breast

Wishing and praying that it is nothing.

Amelia
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Old 04-15-2010, 12:33 PM   #9
Ellie F
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Re: Breast changes in remaining breast

Hi Jackie
Just sending my hopes and prayers that this turns out to be b9. Please let us know how it goes.

Ellie
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