HER2 Support Group Forums - View Single Post - Any one else a Stage 1 AND Grade 1 Her2++++?

Laurel · 02-01-2009, 06:30 PM

I am one of those rare cases, too. I had extensive DCIS which was high grade, and IDS. The invasive component was 7mm, low grade (1), stage 1b, mucinous cancer. Mucinous cancer is rare and considered quite non-aggressive. If I recall correctly only 2% of all breast cancers are mucinous. I had a really low mitotic rate. However, I was ER pos. at 80%, PR pos at 90%, and Her-2 with a FISH of 6.9. and node negative. I was not covered by insurance to have my oncodex score tabulated because with my Her-2 status my onc. said I would be assured to be recommended for chemo.

She recommended 8 rounds of ACTH, 4 AC, 4TH with a year of Herceptin. I am also taking 2 years of Tamoxifen and them will shift to 3 years of an A.I.

I wasn't convinced I needed all that chemo. To be honest sometimes I still wonder, but I knew that I would not have to look back with regret if I should recur. I've fought the good fight.

02-01-2009, 06:30 PM	#13
Laurel Senior Member Join Date: May 2008 Location: Hershey, PA. Live The Sweet Life! Posts: 2,005	I'm an oddball, too! I am one of those rare cases, too. I had extensive DCIS which was high grade, and IDS. The invasive component was 7mm, low grade (1), stage 1b, mucinous cancer. Mucinous cancer is rare and considered quite non-aggressive. If I recall correctly only 2% of all breast cancers are mucinous. I had a really low mitotic rate. However, I was ER pos. at 80%, PR pos at 90%, and Her-2 with a FISH of 6.9. and node negative. I was not covered by insurance to have my oncodex score tabulated because with my Her-2 status my onc. said I would be assured to be recommended for chemo. She recommended 8 rounds of ACTH, 4 AC, 4TH with a year of Herceptin. I am also taking 2 years of Tamoxifen and them will shift to 3 years of an A.I. I wasn't convinced I needed all that chemo. To be honest sometimes I still wonder, but I knew that I would not have to look back with regret if I should recur. I've fought the good fight. __________________ Smile On! Laurel Dx'd w/multifocal DCIS/IDS 3/08 7mm invasive component Partial mast. 5/08 Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH 0/5 nodes 4 AC, 4 TH finished 9/08 Herceptin every 3 weeks. Finished 7/09 Tamoxifen 10/08. Switched to Femara 8/09 Bilat SPM w/reconstruction 10/08 Clinical Trial w/Clondronate 12/08 Stopped Clondronate--too hard on my gizzard! Switched back to Tamoxifen due to tendon pain from Femara 15 Years NED I think I just might hang around awhile....