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Re: Xeloda and Tykerb along with/Dex
Oh Hezzy I'm sorry things are so difficult right now. The things you are doing are very worthwhile. Unfortunately I found Dex a very difficult drug: it made me disorganised, impulsive overactive and scattered-not to mention the awful effect on sleep. I took it as an anti -nausea agent and I understand you are taking it to reduce swelling, so the amount may be very different. On top of everything else you have earache and an extremely sore throat. Little wonder you are feeling so lost and miserable. Take the advice about timing the Dex so you can get as much sleep as you can. Were you given anything to help sleep? Try and get as much of a routine happening as you can and try to enjoy the little sleep you can manage. I'm hopeful that you will start to get better as the drugs start to take effect and perhaps the amount of Dex will then be able to be reduced. Do keep communicating to your doctors just how difficult you are finding this time.
I'm thinking of you often and hoping things are getting easier. Thanks for posting.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004 6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006 oopherectomy, Arimedex
12/2006 liver mets largest 9cm
1/2007 Herceptin,
3/2007 Taxol + Herc
1/2008 Herc alone
4/2008 Multiple bone mets,Zometa
7/2008 Herc + Gemcitabine
8/2008 Herc+Navelbine/vinoralbine
10/2008 Herc+Carboplatin+Taxol
12/2008 Tykerb+Xeloda
2/2010 Herceptin + trial drug
5/2010 Herceptin+Tykerb
8/2010 Tykerb+Abraxane
9/2010 Abraxane
12/2010 Abraxane+Tyk+Herc
4/2011 Tyk+Herc+Femara
6/2011 Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011 Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011 Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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