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My path report indicated IBC. I found the "tumor" myself, went to my PCP. He didn't feel anything; mamo didn't find anything. In fact, their report said everything was normal. I went back to my primary care dr. and he finally sent me to a surgeon. Had biopsy, came back IBC. Started with chemo -- Herceptin, taxol and carbo -- 8x; then MRM (left) and then 35 days of radiation. After mastectomy my path report came back negative for any sign of cancer in the breast tissue and lymph notes. It's because of Herceptin!! I had all the classic symptoms -- swollen, red, warm breast, and pain from armpit to nipple. Since I was born was inverted nipples, that symptom may or may not have been present. I was dx in Jan. 05. My reconstructive surgery is scheduled for this Dec. I am very fortunate that my surgeon recognized it at once and treatment was started right away. I am also extremely fortunate that herception was there when I needed it!!!!
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